Reverse Rett
@reverserett
UK #RettSyndrome patient advocacy organisation.
ID: 159124085
http://www.reverserett.org.uk 24-06-2010 14:28:37
12,12K Tweet
3,3K Followers
1,1K Following
Yesterday Taysha Gene Therapies provided an update to their Rett syndrome program TSHA-102. Here are links to further information including press release, community letter and our key take aways for families. #rettsyndrome #raredisease #genetherapy tinyurl.com/3c5uddn2
Charities have been in the news this week because of the £500K Children in Need scam. FundraisingRegulator has urged charities to make sure that all fundraisers are legitimate. But how does any charity ensure that people out there using their name are genuine? Are smaller charities
Reverse Rett Maddie is 16 yrs old. She has the longest legs in Leeds. She is brave, beautiful, clever and cheeky. She is a flirty girty. We need #cure #reverserett #Rett #RareDisease Maddie is waiting to show the world what they're missing 🍉🙏🤞💜💙💋