The doctor will try different medications/doses until they find something that works for you. We then learn by trial & error what lupus doesn't like & what it does. We're all different & are all on a different journey with lupus.

#lupus #lupus trust #lupus fact #lupus awareness

As I get older and get more aches and pains the harder it is to remember what it was like when I had no pain at all.

#chronicpain #autominnunedisease #invisibleillness #lupus fighter #chronicillness #LupusLife #lupus warrior #lupus #lupus trust #lupus awareness #chronicnotebook

Sadly true. 🫤

#chronicpain #autominnunedisease #invisibleillness #lupus fighter #LupusSucks #chronicillness #LupusLife #lupus warrior #lupus #lupus trust #lupus awareness #lupus truth #lupus facts

If you think you may have lupus but are having difficulty getting a diagnosis our article 'what to do if you think you have lupus but can't get a diagnosis' may help: lupus.org.uk/.../what-to-do…...
#WorldLupusDay #chronicpain #autominnunedisease #invisibleillness #lupusfact

When you tell people that you have lupus they sometimes don't understand that lupus is infact a chronic often debilitating disease with (currently) no cure and is sometimes even fatal.

#WorldLupusDay #Lupus #lupustrust #lupusfact

I put a lot of effort into making sure I look well, as I can to a certain degree, control that. I don't want to feel awful then look in the mirror & look awful too as that makes me feel even worse.

#lupus #lupus trust #lupus awareness

Relatable? 😐

#chronicpain #autominnunedisease #invisibleillness #lupus fighter #LupusSucks #chronicillness #LupusLife #lupus warrior #lupus #lupus trust #lupus awareness #lupus truth #lupus facts

For me this is exactly right. not one person knows when I get very sick. I prefer to stay at home in the peace and quiet and recover until I feel well enough to interact with people again.

#lupus #lupus trust #lupus awareness #chronicillness #chronicpain

Made me laugh as it's totally accurate!! 😁

#chronicpain #autominnunedisease #invisibleillness #lupus fighter #LupusSucks #chronicillness #LupusLife #lupus warrior #lupus #lupus trust #lupus awareness #lupus truth #lupus facts #doctorsappointment

Yep!! 🙄

#chronicpain #autominnunedisease #invisibleillness #lupus fighter #LupusSucks #chronicillness #LupusLife #lupus warrior #lupus #lupus trust #lupus awareness #lupus truth #lupus facts

As members of the Prescription Charges Coalition, we’re joining The PDA, National Pharmacy Association, RCGP, Royal Pharmaceutical Society in calling for an urgent review of the exemption list for prescription charges in England.

Find out more-
prescriptionchargescoalition.co.uk #ReviewTheList #lupus

It always saddens me when I see people post that they feel they're a burden. We didn't ask for lupus and we didn't deserve it, so remember these words.

#lupus #lupus trust #lupus awareness #chronicpain #chronicillness #invisibleillness #autoimmunedisease #lupus warrior

It's no wonder we sometimes fell like this, we put up with a lot & for the majority of the time in silence. 😐

#chronicpain #autominnunedisease #invisibleillness #lupus fighter #LupusSucks #chronicillness #LupusLife #lupus warrior #lupus #lupus trust #lupus awareness #lupus truth

Lupus in a nutshell! 😐

#chronicpain #autominnunedisease #invisibleillness #lupus fighter #LupusSucks #chronicillness #LupusLife #lupus warrior #lupus #lupus trust #lupus awareness #lupus truth #lupus facts

Very true! 🙄

#chronicpain #autominnunedisease #invisibleillness #LupusSucks #lupus fighter #chronicillness #LupusLife #lupus warrior #lupus #lupus trust #lupus awareness #lupus truth #lupus fact

This happened to me recently and I reacted exactly the same way 😁

#chronicpain #autominnunedisease #invisibleillness #lupus fighter #LupusSucks #chronicillness #LupusLife #lupus warrior #lupus #lupus trust #lupus awareness #lupus truth #lupus facts

I find myself trying to negotiate with my body saying 'I know there has to be some pain, but could it be a bit less than this?'

#chronicpain #autominnunedisease #invisibleillness #LupusSucks #chronicillness #LupusLife #lupus warrior #lupus #lupus trust #lupus awareness

And so they should!

#chronicpain #autominnunedisease #invisibleillness #lupus fighter #LupusSucks #chronicillness #LupusLife #lupus warrior #lupus #lupus trust #lupus awareness #lupus truth #lupus facts

Very true, it's exhausting explaining over and over why you aren't 'better yet' or how 'yes, you're still in pain'.

#chronicpain #autominnunedisease #invisibleillness #lupus fighter #LupusSucks #chronicillness #LupusLife #lupus warrior #lupus #lupus trust #lupus awareness

I start a story, lupus brain fog kicks in and I can't remember where the heck I was going with it, so I just keep going in the hope I'll eventually remember. 😆

#lupus #lupus trust #lupus awareness #brainfog #lupus brainfog #chronicillness #autoimmunedisease #chronicpain