Lupus Trust(@lupustrust) 's Twitter Profileg
Lupus Trust

@lupustrust

The Lupus Trust was set up as a registered charity in 1991. Its aim is to support lupus research at Guys Hospital & raise lupus awareness.

ID:525498869

linkhttp://www.lupus.org.uk calendar_today15-03-2012 16:02:23

4,3K Tweets

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182 Following

Lupus Trust(@lupustrust) 's Twitter Profile Photo

A sadly accurate description. As you get older more aches and pains come along so I can't remember when I last had a completely pain free day, something others take for granted.
trust awareness

A sadly accurate description. As you get older more aches and pains come along so I can't remember when I last had a completely pain free day, something others take for granted. #chronicpain #autominnunedisease #invisibleillness #lupus #lupustrust #lupusawareness
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This is really accurate, of course we'd like a cure but 'manageable' would be great. At least then we'd be able to do more, plan things in advance and have some sort of 'normal' life.

trust awareness life warrior

This is really accurate, of course we'd like a cure but 'manageable' would be great. At least then we'd be able to do more, plan things in advance and have some sort of 'normal' life. #lupus #lupustrust #lupusawareness #lupuslife #lupuswarrior #chronicillness #chronicpain
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The fact that we know we are going to pay later for any activity we decide to do is a really sad state of affairs, most people have no idea what that's like. We're constantly asking ourselves 'is it worth doing it'?

trust awareness

The fact that we know we are going to pay later for any activity we decide to do is a really sad state of affairs, most people have no idea what that's like. We're constantly asking ourselves 'is it worth doing it'? #lupus #lupustrust #lupusawareness #chronicillness
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The Lupus Trust is funding a study looking at how menopause and HRT affect women with lupus. It is being led by Melanie Sloan at Cambridge University. The team are looking to recruit a researcher to help with this study, either full time or part time:

jobs.cam.ac.uk/job/45849/

The Lupus Trust is funding a study looking at how menopause and HRT affect women with lupus. It is being led by Melanie Sloan at Cambridge University. The team are looking to recruit a researcher to help with this study, either full time or part time: jobs.cam.ac.uk/job/45849/
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Although lupus is a treatable disease, there's no '1 size fits all' when it comes to medication. You may have to try various medications in various combinations and various doses until you find something that works for you.

awareness trust

Although lupus is a treatable disease, there's no '1 size fits all' when it comes to medication. You may have to try various medications in various combinations and various doses until you find something that works for you. #lupus #lupusawareness #lupustrust #chronicillness
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One of the most frustrating things about lupus is that no matter how much sleep you manage to get you still feel exhausted.

trust awareness life

One of the most frustrating things about lupus is that no matter how much sleep you manage to get you still feel exhausted. #lupus #lupustrust #lupusawareness #exhausted #chronicillness #chronicpain #lupuslife
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When you get diagnosed with chronic illness it often means that some/all of the plans you had will have to change. Some you don't mind so much but others cause us a feeling of significant loss.

When you get diagnosed with chronic illness it often means that some/all of the plans you had will have to change. Some you don't mind so much but others cause us a feeling of significant loss. #Lupus #lupustrust #lupusawareness #loss #chronicillness #ChronicPain #lupuswarrior
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