1/So our preprint (not peer reviewed yet) on barriers faced by people likely to have #LongCovid but haven't managed to access healthcare yet is out. This work was co-produced from start with people who had lived experience of LC.

So what did we find? 🧵
medrxiv.org/content/10.110…

The autistic desire to return home whenever you’re out - even when you’re somewhere you love - because you: a) feel more secure in your most familiar, tailored environment that has all your things; and b) know you must return home eventually, so can’t fully settle anywhere else.

Updated version for Edinburgh just uploaded for testing/feedback, more comments welcome. One thing to note: we didn't choose the categories, it's Cycling By Design spec. Interactive version: github.com/nptscot/osmact… feedback v. welcome 🙏

Charity shop finds are so strange, like what do you mean there’s entire books that people wrote about being highly sensitive and they don’t stumble across neurodiversity even once in their research.

Like, ma’am, that reads like autism to me.

How fun. Now I have COVID for the 5th time, and I am simultaneously having a shingles outbreak. Turns out there is some evidence COVID may increase the risk for a shingles outbreak in people over 50.
academic.oup.com/ofid/article/9…

WHO Announce Norovirus Spread By Wet Tummy Rainbows

A step closer to publication in August, and exposure of 30 years of #DWP (and DSS) violence, and the devastating events of the last 15 years. It's a work of investigation and remembrance, and a call for action.
Thanks Neda Tehrani + everyone at Pluto Press:
twitter.com/neda_teh/statu…

PLEASE stop tying up Red emergency cords in accessible toilets & if you see one tidied up, please untie it

It should hang all the way to the floor - & it can be vitally important for the health & safety of disabled folk

1st pic is what NOT to do, 2nd pic is what to do

My coworker dead ass looked at me in the face today and said, 'You know, even outside of your *dismissive hand wave* covid stuff, it's been a bizarre sick season. Last week 2 kids were out of my son's class for migraines, MIGRAINES! Since when do kids get migraines?'

🫠

In 1993 my ME/CFS was so severe that I sometimes had difficulty chewing and swallowing due to dysfunction in the muscles involved. I also couldn’t sit, speak, move in bed or lift a spoon to my mouth for the same reasons. 🧵

#SaveCarlasLife #ExposeMENow #BringMillieHome

If you employ people, please be the boss who calls their next of kin if they don’t turn up for work and you have concerns. My father was a no show this morning, his boss has hopefully saved his life by being an absolute legend. Not out of the woods, but alive thanks to the NHS

Is there an #epidemiologist , #virologist , #neurologist , #cardiovascular specialist, #GP , #Physician or other #Medic in the whole of twttr who is brave enough to explain their not masking in indoor spaces with other people, such as conferences and hospitals?

New research out today finds that the amount saved in unclaimed benefits has shot up by £4 billion since last year from £19 billion to £23 billion. That's £8 billion since 2021.

DWP claims £8.2 bill was lost in fraud and error last year. whilst almost 3 times that was saved by…

Government plans for bank account surveillance are likely to violate human rights and could amount to “unlawful discrimination”.

The new snooping law will disproportionately impact disabled people, people of colour, women and older people.

bigissue.com/news/social-ju…

The DWP is forcing a grandmother to pay back more than £7,000 – after she failed to notify it about a change in her circumstances 5 years ago when she was in the early stages of dementia

The DWP is deliberately targeting the vulnerable

Parasitic
theguardian.com/society/2024/a…

Just over 3 years ago I was discharged from a 7 month hospital stay where I was repeatedly and deliberately pushed to unconsciousness, made to faint on a tilt table several times a week, had the lights switched on and blinds opened when it caused pain #ExposeMENow #SaveCarlasLife

Every 16 minutes someone is killed or seriously injured on UK roads.

#SUVs are *8x more likely* to kill a child than an average passenger car.

Bigger cars come at a cost.

Great piece from Campaign for Better Transport on the dangers of car bloat 👇

The DWP has ordered a 92-year-old woman with advanced Parkinson’s to repay more than £7,000 for a tiny benefits oversight five years ago - when she was in the early stages of dementia

Full story: theguardian.com/society/2024/a…

Irregular 40+minute bus journeys between close distances = why so many folk rely on cars
Google maps of the blue X28 route, with a red line from Mid Calder to St John's Hospital.
The unsafe walking route takes an hour
#WhenTownsAreBuiltForCars