Katie Johnstone (@sockfoam) 's Twitter Profile
Katie Johnstone

@sockfoam

She/her. Chronically ill with ME and POTS, Blogger on Substack, @kjohnstone.bsky.social

ID: 1476968940815462408

linkhttps://linktr.ee/KathleenJohnstone calendar_today31-12-2021 17:30:45

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Michael R Scoma MD (@drscomame_cfs) 's Twitter Profile Photo

Severe and very severe ME/CFS patients are the sickest patients I’ve ever seen - even compared to septic transplant or end-stage cancer patients. The unrelenting suffering and lack of research or definitive treatments puts severe ME/CFS on another level. Nothing compares...

Katie Johnstone (@sockfoam) 's Twitter Profile Photo

My personal experience backs this up, never disclose any #MentalHealth problems to healthcare professionals if you can avoid it. People with mental health problems deserve respect and care like any patient. But unfortunately the medical stigma is extreme.

Katie Johnstone (@sockfoam) 's Twitter Profile Photo

a little video with reflections on my time campaigning on ME/CFS in the UK. I looks at compromises I found myself making as a campaigner, why I'm not doing campaigning work anymore, and a bit of an update on my life. youtu.be/fXycJLLCQEs

Kelly (@broadwaybabyto) 's Twitter Profile Photo

I will be the first to admit I couldn’t understand why anyone would oppose Assisted Dying… and then I became disabled and had it “offered” to me. It’s not compassionate when there’s coercion. It’s not dignified when it’s offered in lieu of care. Listen to disabled people.

The Bar Council (@thebarcouncil) 's Twitter Profile Photo

Bar leadership joint statement on jury trials This week a government memo was leaked to the media suggesting that the Ministry of Justice is planning to remove the right to jury trials in most Crown Court cases. We recognise this news has caused a great deal of concern among the

Jeff Leggat (@ashoutabout) 's Twitter Profile Photo

We are calling on BC NDP, Brenda Bailey & Sheila Malcolmson to increase the monthly Disability Income Support to EQUAL the Official Poverty Level of Canada (MBM or LICO) - IMMEDIATELY! Current level is BELOW POVERTY LEVEL by over $600/mo! ***based on 2023 MBM statistics***

Carole Bruce (@carolebruce17) 's Twitter Profile Photo

Wes Streeting Royal Free London I twice had phenomenal care for my cancer on the NHS. I have had no support, care nor treatment for my ME for 33 years. Several friends have died from ME, others have taken their own lives. I wish illnesses were treated equally.

Katie Johnstone (@sockfoam) 's Twitter Profile Photo

Medical gaslighting is actually very funny. I mean it's horrific and causes extreme harm, but apart from that, it's very funny!

Katie Johnstone (@sockfoam) 's Twitter Profile Photo

Imagine being a teenager in agonizing pain and having doctors tell you you're "hypersensitive". Instead of offering pain relief, doctors tell you to rub a piece of material against your skin to "desensitize" you. Article from 2022. #MedicalGaslighting #SymptomInvalidation

Mark Roseman 🤦🏻‍♂️🙄☕️🖥 (@markroseman) 's Twitter Profile Photo

This piece of satire from a few years back is still pretty much the reality for many people seeking care in BC, and reflects the seriousness that our health leadership is devoting to the problem.

This piece of satire from a few years back is still pretty much the reality for many people seeking care in BC, and reflects the seriousness that our health leadership is devoting to the problem.
Katie Johnstone (@sockfoam) 's Twitter Profile Photo

Thread exploring the ways people not only minimise illness, but keep it off the menu of things that are allowed to be discussed. I find this fascinating; in my experience most of life's biggest problems exist in those quiet places that are hard to name.

Katy B (@katybruce108) 's Twitter Profile Photo

Channel 4 News Here's an important thread on one of the other 'experts' who are involved in the review, Simon Wessely Channel 4 News should perhaps consider doing a piece on him.. x.com/ABrokenBattery…