Gut bacteria can influence social behavior and decision-making! 🤯 A new European study sheds light on the microbiome's role in human social interactions #GutHealth #Microbiome #MedicalResearch

There’s always someone who has to pop up to tell me how ill they were and they WERE DETERMINED to beat it and they did. Good for you. Want a medal? You got lucky. Nothing to do with you having more determination than those of us who haven’t got lucky and are not improving.

A recent discovery identified a new mechanism regulating: - neuroinflammation and - neurodegeneration It might explain exactly why these two brain pathologies are so common. Here is what you need to know (in simple terms)...🧵

The psychologists are coming for Long Covid in the UK strongly now. "The group will work to develop guidance about Long Covid and how psychologists contribute to rehabilitation, treatment and support." bps.org.uk/news/call-memb…

ME is the only illness where they have to research a cure for the doctors before they can move on to the patients.

How did it come to this? People commenting that preparing for medical appointments feels like preparing for a trial. Preparing evidence, hoping to convince the jury! People even stop going to appts because it’s just too stressful.

Why aren't your treatments working? If you have #ME or #LongCovid and have been trying everything under the sun and nothing seems to turn the dial then this post is for you. This is the question that has consumed me for years. When I look at the treatment protocols of some of

As long as funding for #MECFS continues to be pissed away, the more young people will die. I’ll never comprehend the lack of concern. The complex treachery may not be pretty, but it sure AF doesn’t warrant neglect to the point of literally burying a disease. #LongCovid #pwME

🔴 𝐎𝐩𝐢𝐧𝐢𝐨𝐧 𝐨𝐧 𝐭𝐡𝐞 𝐫𝐞𝐜𝐞𝐧𝐭 𝐩𝐫𝐞𝐩𝐢𝐧𝐭 𝐩𝐮𝐛𝐥𝐢𝐬𝐡𝐞𝐝: 𝐌𝐲𝐚𝐥𝐠𝐢𝐜 𝐄𝐧𝐜𝐞𝐩𝐡𝐚𝐥𝐨𝐦𝐲𝐞𝐥𝐢𝐭𝐢𝐬/𝐂𝐡𝐫𝐨𝐧𝐢𝐜 𝐅𝐚𝐭𝐢𝐠𝐮𝐞 𝐒𝐲𝐧𝐝𝐫𝐨𝐦𝐞 (𝐌𝐞/𝐂𝐟𝐬) 𝐇𝐲𝐩𝐨𝐭𝐡𝐞𝐬𝐢𝐬: 𝐓𝐡𝐫𝐞𝐞 𝐒𝐮𝐛𝐭𝐲𝐩𝐞𝐬 𝐨𝐟 𝐍𝐨𝐫𝐚𝐝𝐫𝐞𝐧𝐞𝐫𝐠𝐢𝐜

As long as I have #PEM, it is not possible to become a fully-fledged member of this performance-driven society. #MECFS

Such a goddamn travesty Cochrane hasn’t pulled this yet and that we’re still waiting on a replacement. Our lives mean nothing.

Me finding out I have ME/cfs from nice people on twitter after 2 years of Long COVID and dozens of useless doctors.

Uncomfortable truth time - disabled & marginalized patients are frequently mistreated in hospital settings. When you say “just walk out” or “just file a complaint” you’re failing to take into consideration the huge barriers to care we face (and the risk of retaliation) 🧵/1

Spent Sunday doing the Lord's work being Reviewer #2. Me: "The paper presents a biased & problematic view by focusing solely on female patients & implying that they somatize their symptoms. This outdated perspective undermines the serious physiological nature of #LongCovid."

To share my credentials: -8 years of ME/CFS experience -8 years of professional research experience -3 years of research in ME/CFS experience -Approx. 10,000 publications read -Top of my graduate class; ran a genetics department -Thousands of patients personally talked to through

In 3weeks I turn 30. I’ve never had a relationship. Never been on holiday with friends. Never finished my education, or gone out to work. I’ve never lived away from family. I’ve never cooked a meal. It’s 14yrs since I went out on my own. I have #MECFS

The struggle with #MECFS isn’t just intolerable but unnecessary. This level of suffering doesn’t “build character” for anyone. It only leaves ourselves and our lives in ruins. I’ll never grasp this new reality. It’s so depressing. #LongCovid