Sue Farrington
@farrsue01
Chief Exec Scleroderma & Raynaud's UK (SRUK) - @wearesruk - President FESCA - Chair Patient Information Forum (PiF) @pifonline
ID: 360715217
23-08-2011 17:06:44
2,2K Tweet
423 Followers
440 Following
Matthew Slater
@matt_slater
Composer for feature film, short film and TV dramas. Waves arms at orchestras too. • Endeavour • Grace • Tom Jones • Forget Me Not Management: @smatalent
Chris Wincup
@chriswincup
Rheumatologist specialising in #lupus @ King’s College Hospital 🏥 @VersusArthritis Research Fellow @UCL 🧪 OMERACT & EULAR SLE Working Group 🧬
Rare Disease Day
@rarediseaseday
29 February 2024 is Rare Disease Day. Raising awareness for patients, families and carers around the world that are affected by rare diseases. #RareDiseaseDay
Latika
@latikagupta_
Rheumatologist & Immunologist | Co-chair @EMEUNET SoMe, @APLAR_org Young board| Myositis, digital health, equity researcher |
EURORDIS-Rare Diseases Europe
@eurordis
An alliance of over 1,000 patient organisations working across borders and diseases to improve the lives of all people living with rare diseases.
Paul Howard 🐈🐈⬛
@paulahoward89
I'm a geek who enjoys running. I live with my wife (Frances) and two rescue cats (Cheesecake & Churro)| he/him
Pedro Carrascal
@pcarrascal
Patient advocacy / Director de la Plataforma de Organizaciones de Pacientes (POP)
LUPUSUK 💙
@lupusuk
LUPUS UK is the only national registered charity supporting people affected by #lupus and assisting those approaching diagnosis. Reg Charity: 1200671
Silvia Aguilera
@sil_aps
🇪🇺 APS ePAG in @ern_reconnet🩸Spanish APS Association vice president (@afosfolipido) 👩🏻🔬PhD in Materials Science
Scleroderma Society of Ontario
@scleroderma_sso
We are committed to promoting increased public awareness, advancing patient wellness and supporting research in scleroderma. #scleroderma #autoimmunedisease
Vasculitis - In memory of John Mills MBE 💙💚
@vascuk
Vasculitis - A Rare Rheumatic Autoimmune Disease - Vasculitis UK trustees are all volunteers.
Hector Chinoy
@drhectorchinoy
Professor of Rheumatology & Neuromuscular disease, University of Manchester/Salford Royal, UK. Interests in myositis, running, Newcastle United , views my own!
EULAR
@eular_org
The European Alliance of Associations for Rheumatology. The registration for #EULAR2024 Congress is now open!
SRFCure
@srfcure
America’s leading nonprofit investor in medical research aimed at finding better treatments and, ultimately, a cure for #scleroderma.
BSR
@rheumatologyuk
The UK's leading specialist medical society for adult and paediatric #rheumatology and #msk health professionals. Note: we're unable to answer patient queries.
Zehra Irshad
@zehrairshad
Chief Registrar and Academic Clinical Fellow in Endocrinology and Diabetes, University Hospital Coventry & Warwickshire
Elisabeth Kasilingam
@lili_bxl
Advocating for a better world starting now and here. Debating helps improving. Let's talk...
SRUK | Scleroderma & Raynaud's UK
@wearesruk
Scleroderma & Raynaud’s UK is the only charity dedicated to improving the lives of people affected by scleroderma and Raynaud’s.
APS Support UK
@apssupportuk
APS Support UK is dedicated to raising awareness of antiphospholipid syndrome (APS), supporting anyone affected by the condition and furthering research.
Cosimo Bruni
@cosimobruni
Coralie Bouillot
@cobouillot
Passionnée par la médecine...donc la santé...et forcément l'innovation qui va avec :-) Pro vax, pro masques et antifakemed 😎#Eular #ERNReConnet #EMA
National Scleroderma Foundation Tri-State
@sclerodermats
We strive to raise awareness, support #scleroderma patients and raise funds for a #cure. sclerodermatristate.org
carla garbagnati
@carlagarbagnati
Saper ascoltare
Danny Silk
@danny_silk
Digital and data solutions to make the NHS and UK public services brilliant 📊 | Associate Partner @WeAreThePSC 👨🏻💻 | Dad 👶🏻🐶🏳️🌈
Louise Trewern 🇬🇧
@loulouscorpio
Immediate Past VP-@PatientBPS @livewellpain @FestivalPain @WorksWalking @PhysioPainAssoc LX Opioids Advocating Safe Prescribing
Marta Newman
@martanewman
TV producer and journalist for @BBCBreakfast & @BBCNews at One 📺 Occasional newsreader 📻 Bilingual 🇬🇧🇵🇱 My views 📧 [email protected]
sara cannizzo
@saracannizzo
Scleroderma Canada
@sclerodermacan
Scleroderma Canada is committed to promoting public awareness, supporting those affected by Scleroderma and funding research to find a cure.
Paula Manning Physio She/Her
@manning2paula
Physio,active thinker. Interests mental health, public health. Phys Act Clinical Champion AWRC, CEO Healthy Chats CIC Tweets =my own
Hussein Al-mossawi
@mhalmossawi
Action for Pulmonary Fibrosis
@actionpfcharity
💜UK charity supporting people affected by pulmonary fibrosis 🧬funding research towards a better future for people living with PF 🤝together we are stronger
Leeds Teaching Hospitals
@leedshospitals
We are no longer providing regular updates or responding to posts on X. Follow us on Facebook, Insta & Bluesky for updates & stories from our staff & services.
Susie Dent
@susie_dent
That woman in Dictionary Corner. @susiedent.bsky.social
Jamy🎗️
@jana_84_
Moeder van een ❤️ kindje. #LivingMyDream #Ik gun iedereen ❤️❤️ - 🇮🇱 ❤️-🇵🇸❌
Christos Koutsianas
@dr_c_koutsianas
Rheumatologist-Internist @ 2nd Dpt of Medicine, University of Athens Medical School, Hippocration Hon Consultant @ R&D The Dudley Group NHS Foundation Trust
Pain Alliance Europe
@pain_europe
PAE aims to promote awareness of chronic pain, promote a European policy on chronic pain, and reduce the impact of chronic pain on the European society.
S. Tomaras
@steliostomaras
Rheumatologist & Osteologist in Helios Fachklinik Vogelsang-Gommern in Germany. Interested in #myositis #RA #osteoporosis
Inita Bulina
@initabulina
reimatoloģija
DrFiona_Pearce
@drfiona_pearce
Epidemiologist/Health Data Scientist, Rheumatologist @UniofNottingham Interests: #raredisease #vasculitis #lupus #connective tissue disease She/her.
ZoiAn
@zoian2
A curious person; a vasculitis expert patient; a vasculitis awareness voice. Love and respect is my religion. Expressing personal views. #vasculitis
Diana Marinello
@dianamarinello
Laurent ARNAUD
@lupusreference
MD, PhD | Professor of #Rheumatology | #Lupus #SLE | #Digitalhealth | @SLEuroSociety | @ERN_ReCONNET Disease Coordinator for Lupus & Polychondritis 🇪🇺
Marta Mosca
@martamartamosca
Professor of Rheumatology, ERN ReCONNET Coordinator, Head of the Rheumatology Unit of Pisa, University of Pisa #SLE #connectivetissuediseases #rarediseases
Shannen Beadle
@sbdischargefac
Discharge Facilitator @LCHNHSTrust at @LeedsHospitals and Bank nurse in a care home #Leeds …… MSc in Advanced Dementia Studies 2022 @UniofBradford #Muslim
Rosaria (Sara) Talarico
@saratalarico2
MD, PhD. Rheumatologist at the Azienda Ospedaliero Universitaria Pisana. ERN ReCONNET Scientific Coordinator. Working on Rare and Complex Diseases, Behçet.
Hi, It's me
@jyotibudhatho10
Surviving systemic scleroderma with Taylor Swift’s music folklore, Speak Now, & evermore heal me, her lyrics break me, yet make me whole again. #Fearless
Raffaella Gallo
@raffaellagallo_
Cell biologist. @Fondaz_Veronesi Postdoctoral Fellow at UMG, Catanzaro 🇮🇹 - PhD from @pelkmanslab , University of Zurich🇨🇭
RECORDER Project
@recorderuk
Registration of Complex Rare Diseases - Exemplars in Rheumatology @DrFiona_Pearce @lanyon_peter @meganlizi In collaboration with #NDRS @NHSDigital #rarediseases
DrMG
@giannini85
MD, PhD, Rheumatologist, Physiologist, University of Strasbourg, researcher in Myositis and Sarcopenia
John
@sclerojohn
scleroderma Canada Executive Director
Tânia Santiago
@tanialsantiago
Rheumatologist in @CHUC_Hospital, #CHUCSclerodermaClinic #Capillaroscopy, Member of @eustar_org Board, PhD, @UnivdeCoimbra @befmuc
SclerodermaAustralia
@scleroaus
Scleroderma Australia has been incorporated since 2005 to facilitate a national representative voice in supporting our scleroderma community across Australia.
Innovation in Health Information Systems unit
@ihis_unit
@Sciensano's unit aiming at strengthening health information systems in Europe, Belgium and in Sciensano.
Nf
@noahfroud
Bristol Scleroderma Service (BSS)
@bristolbss
The Bristol Scleroderma Service provides care to people and families affected by Systemic Sclerosis (scleroderma).The clinic is based at North Bristol NHS Trust
Robert Grange
@robertgrange15
Medical Science Liaison - PH (Pulmonary Hypertension), at The Janssen Pharmaceutical Companies of Johnson & Johnson
Charlotte Brownsword
@charlottebpif
As the newest member of the PIF team I am very excited to get to know the PIF members and support you in providing the very best quality health information.
DrPasEle
@drpas84ele
Communication | Advocacy | Policy | #Neuroscience #PhD | Founder n President of #RareSpecialPowers | #rarediseases | #pinksocks | Own views
Scleroderma India
@scleroindia
A Charitable Trust and Patient Support Group
Sammy Ainsworth
@sammy_ainsworth
Youth and Family Coordinator @CRFalderhey @EATC4Children @LiverpoolGenR1 @GenrYPAGs • Chair @raiiseuk • Trustee @LupusUK
Alice Grosjean
@sjogrenchalice
Patient advocacy & education 🇪🇺 @eular_org PARE Committee🇨🇭@sjogrenCH & Rheumaliga. Social sciences student with interest in RMDs & diabetes
Dr. Dinesh Khanna
@sclerodermaum
👉University of Michigan Scleroderma Program leading the way through excellence in clinical care, teaching, & research #scleroderma tweets≠advice Follow≠endorse
ERN ReCONNET 🇪🇺
@ern_reconnet
🔬🩺 European Reference Network on Rare and Complex Connective Tissue and Musculoskeletal Diseases #ERNReCONNET
Maureen Sauve
@sauvemaureen
World Scleroderma Foundation
@worldsclerofnd
The World Scleroderma Foundation is a non-profit, non-governmental foundation based in Switzerland, promoting scleroderma research and supporting patients.
Ana Vieira
@sjogrenpowerana
Sjögren’s ePAG. @eular_org PRP + Research Committee member. @SjogrenEurope @ern_reconnet @HarmonicSS_Proj @LPCDR82 @Agora_Platform #FOREUM SC member.
PAHSSc
@pahsscdernegi
#PulmonerHipertansiyon ve #Skleroderma Hasta Derneği #eisenmenger, #ipf, #KTEPH, #PAH, Akciğer Nakli ve Organ Bağışında Varsayılmış Onam Sistemini savunur.
Charlie Harper
@charlieharperuk
Trial Data Scientist for CTSU @oxford_NDPH @UniofOxford Advocate for streamlining CVD trials through the use of EHR data