EUPATI
@eupatients
The European Patients' Academy on Therapeutic Innovation is an independent, non-profit organisation committed to patient engagement through patient education.
ID: 465674067
https://eupati.eu/ 16-01-2012 16:27:28
6,6K Tweet
7,7K Followers
1,1K Following
Radboudumc
@radboudumc
Officieel Twitteraccount van het Radboudumc Nijmegen.
Rare Disease Day
@rarediseaseday
29 February 2024 is Rare Disease Day. Raising awareness for patients, families and carers around the world that are affected by rare diseases. #RareDiseaseDay
University College Dublin
@ucddublin
Official source of news from University College Dublin (UCD) - Ireland's Global University. Est. 1854. One of Europe's leading research-intensive universities
EURORDIS-Rare Diseases Europe
@eurordis
An alliance of over 1,000 patient organisations working across borders and diseases to improve the lives of all people living with rare diseases.
Trinity College Dublin
@tcddublin
Official source of news from Trinity College Dublin. Ireland's highest-ranked university and 87th in the world with a 432-year history of teaching and research.
Jan Geissler
@jangeissler
Patient activist and research patient advocate. Life is precious.
Amsterdam UMC
@amsterdamumc
Wij zijn Amsterdam UMC. We reiken de hand aan Amsterdam & omstreken en aan iedereen die met ons een gezond leven wil bevorderen. #amsterdamumc
European Cancer Organisation
@europeancancer
The largest multi-professional cancer organisation in Europe; reducing burden and improving quality of care. Organiser of the #EuropeanCancerSummit
University of Maryland School of Pharmacy
@umsop
The University of Maryland School of Pharmacy at @UMBaltimore. #UMarylandPharmacy. Learn more about the School: bit.ly/m/UMSOP
Bob Phillips
@drbobphillips
tired dad, mainly. him/he
EU Medicines Agency
@ema_news
Latest news from the European Medicines Agency, the European Union agency responsible for the evaluation and supervision of medicines. RTs ≠ endorsement.
WHO/Europe
@who_europe
The WHO Regional Office for Europe is one of 6 WHO regional offices around the world. It collaborates with a range of public health stakeholders in the Region.
Innovative Health Initiative
@ihieurope
We're an EU PPP funding health research & innovation under #HorizonEU. We also manage IMI projects. Find us europa.eu/!CBGHyv
Leukaemie-Online.de
@leukade
Gemeinnütziger Verein & Wissensdrehscheibe für #Leukämie|Patient:innen, Angehörige und Interessierte mit Fokus auf #CML, #CLL, #AML, #ALL und andere.
Professor Lara Bloom
@larabloom
President & CEO @TheEDSociety•Prof of Practice Patient Engagement & Global Collaboration•Rare & Chronic Disease Advocate•🏳️🌈Gay•She/Her• Views my own
Galapagos
@galapagosglobal
We aim to transform patient outcomes through life-changing science and innovation for more years of life and quality of life | #PioneeringForPatients
European Chemicals Agency - ECHA 🇪🇺
@eu_echa
Working for #ChemicalSafetyEU | We are a regulatory agency of the European Union| Follow our news on LinkedIn and BlueSky | RT≠endorsements.
Anders Olauson
@aolauson
ECCRT
@eccrt
Professional clinical research training to facilitate clinical research professionals to excel in their job for the benefit of patients.
Haute Autorité de santé
@has_sante
La HAS est une autorité publique indépendante à caractère scientifique qui développe la qualité dans le champ sanitaire, social et médico-social.
UCD Research
@ucd_research
UCD is a leading European research-intensive university. #ucdresearch #ResearchImpact Join us over on Bluesky bsky.app/profile/ucdres…
Beacon for Rare Diseases
@rarebeacon
Beacon is a UK-based charity that is building a united rare disease community with patient groups at its heart. Previously known as Findacure.
European Patients' Forum
@eupatientsforum
We are the leading voice of patient organisations in Europe. #EuropeForPatients
EUREGHA - Regional and Local Health Authorities
@euregha
Bringing European Regional and Local Health Authorities together to exchange practices and join forces to achieve #HealthinAllRegions! #Regions4Health
EU One Health
@eu_health
The official account of @EU_Commission Directorate-General for Health & Food Safety (SANTE): #OneHealth: connecting health of humans, animals & plants 👤🐾🌱
Ana Amariutei
@aecaterina
NIHR Involvement
@nihrinvolvement
We share learning, events and advice from @NIHRresearch on engaging patients, service users, carers and the public in health and care research
Bettina Ryll
@bettinaryll
#Melanoma patient advocate, MD/PhD, in want of patient-centred research. Member of the first EU Cancer Mission Board. Views are totally my own.
IPPOSI
@ipposi
IPPOSI puts patient voices at the centre of healthcare & policy. Irish Platform for Patient Organisations, Science & Industry. Registered Charity: RCN: 20062934
The Health Research Authority
@hra_latest
We’re no longer active on X. Head to hra.nhs.uk/updates to find out how to keep in touch.
Amanda Bok
@amanda_bok
All views strictly personal.
VaccinesEurope
@vaccineseurope
VE represents major innovative research-based vaccine companies operating in Europe, including SMEs. VE is a specialised group within EFPIA. #WeWontRest
Horizon Europe🇪🇺
@horizoneu
Funding opportunities, projects & events from the EU's Research & Innovation Programme. Follow also @EUScienceInnov, @EZaharievaEU & @lemaitre_eu
Jim Elliott
@drakesyard
Advocate for patients in health research, public involvement enthusiast and cyclist! I say what I think not what others say.
EUCOPE
@eucope
Giving a bigger voice to small and mid-sized innovative #pharma #biotech #medtech companies in Europe 🎧Sounds of Science Podcast: anchor.fm/eucope
Alberto Abreu Silva
@abreudasilva91
International Federation of Medical Students' Associations (IFMSA) Regional Coordinator for Europe | President of the Portuguese Medical Students Association
Plataforma de Organizaciones de Pacientes
@pacientespop
Agrupamos a 41 organizaciones de #pacientes y 1.813 asociaciones para representar a personas con enfermedades crónicas y/o síntomas cronificados. #pacientesPOP
Dr. Chris Dwyer
@cogitoergodwyer
Researcher; Author; Lecturer: Critical Thinking, Education, Epistemology, Metacognition, Clinical Decision-making, Cognition, MS & Health Literacy; Husband, Dad
Youth Cancer Europe
@cancereurope
A European community led by young people living with and beyond cancer, working to improve the lives of those diagnosed 🎗️
FindMeCure
@findmecure
Whether we help patients find research studies or we help the industry plan successful trials, we have one mission: Bringing Research Closer to Patients.
Global Heart Hub
@globalhearthub
The Global Heart Hub is an alliance of Heart Patient Organisations uniting the patient voice across the spectrum of Cardiovascular Diseases. Join us!
Made WITH Patients
@pfmdwithpatient
We partner WITH patients to develop new solutions and co-create methods for them to achieve their health goals. #MadeWithPatients #PatientEngagement
WAPO
@wapo_org
WAPʘ is a non-profit organization created in order to unite the international pituitary patient community
@EUPATI_GR
@eupati_gr
Greek supporters of the European Patients' Academy on Therapeutic Innovation (EUPATI).
ERDERA
@erdera_org
The European Rare Diseases Research Alliance. Co-funded by European Union's @HorizonEU Research & Innovation programme. Views expressed are of authors only.
Jenni Tamminen-Sirkiä
@tamminen_ry
toiminnanjohtaja, Suomen Syöpäpotilaat ry
EU-PEARL Project
@imi_eupearl
We aim to shape the future of drug development by building a framework to conduct patient focused platform clinical trials. Funded by IMI, Innovative Medicines
Oriana Sousa
@orianasousa3
Psychologist & Patient Advocate; Psycho-oncology Msc; EUPATI fellow; EATRIS-Plus PAC;Rare2030; NRTO- Network Rare Tumors Ovary PA
PREMIER Project
@premierproject6
Contributing to a sustainable future by proactively managing the environmental impact of medicines. Funded by IMI GA num 875508.
National Office for Research Ethics Committees
@nrec_office
The National Office supports a robust, transparent and cohesive research ethics review system that strengthens the national research infrastructure.
Michela Onali
@michi_onali
Cross-cultural mediator, #GNEMyopathy and #RareDisease advocate. I dive into what is #Rare, unexpected and new to me. Share and be #FAIR
Transcan-3
@transcanproject
Transcan-3: Sustained collaboration of national and regional programmes in cancer research. Project funded from EU's Horizon 2020 programme, GA No 964264
HaDEA
@eu_hadea
@EU_Commission's Executive Agency implementing the EU funding programmes for health, food safety, digital, industry and space. RT ≠ endorsement.
African Medicines Agency Treaty Alliance (AMATA)
@africanamata
A multi-stakeholder alliance advocating for meaningful engagement of patients and others in the implementation of the African Medicines Agency (AMA) Treaty
EUPATISverige
@eupatisverige
Swedish national platform for EUPATI - European Patients Academy for Therapeutic Innovation. Swedish Disability Rights Federation, Allmänna arvsfonden.
Facilitate Project
@imi_facilitate
FACILITATE is a project aimed to enable the patients' access to their clinical trial data and to manage the data re-use for other research
EUPATI_Portugal
@eupati_portugal
BeWell Project
@bewellprojecteu
🔧Blueprint alliance for a future health workforce strategy on digital and green skills. 🇪🇺 @EUErasmusPlus funded.
European Network of Youth Cancer Survivors
@youthcancereu
This is the network of survivors for survivors! 🎗️ United we #beatcancer 🇪🇺 Co-funded by the EU under EU4Health (GA no. 101056918)
CTTP-CANTRAIN
@wecantrain
Clinical Trials Training Programs
IHI READI Project
@ihireadi
Creating an Inclusive European Clinical Trials Ecosystem That Values Every Individual’s Health Journey
Clarissa Cooblall
@cacooblall
Scientific & Patient Initiatives @ISPORorg. All things health-related. Tweets are my own.
Anca Toma
@anca4health
ED at @eupatientsforum. Mother, #publichealth geek caring about equity, solidarity, prevention, science. Tweets own views, retweets food for thought.
Savvy Cooperative | #AskPatients
@savvy_coop
Health innovators have questions. Patients + caregivers have answers. Creators of the #AskPatients Lounge™️, coming to a conference near you!
The Digital Health Society
@thedhsociety
Multi-stakeholders community willing to develop actions to foster the deployment of #DigitalHealth across #Europe
Patvocates
@patvocates
PATIENT ENGAGEMENT IS IN OUR DNA
Claudia Egher
@claudiaegher
STS researcher @UtrechtUniversity| expertise & digital practices|valuation practices|mental health
PPI Ignite Network @ University of Galway
@ppi_galway
Public and patient involvement in healthcare research. Patients' lived experience influencing research planning and conduct. @UniOfGalway
Biotech Atelier
@biotechatelier
#BiotechAtelier: the European annual biotech conference bringing together Biotechnology, Life Science, IT, Healthcare and Pharma.