spinalCSFleak(@spinalCSFleak) 's Twitter Profileg
spinalCSFleak

@spinalCSFleak

Spinal CSF Leak Foundation — a US nonprofit to raise awareness, educate and support research on intracranial hypotension + spinal cerebrospinal fluid (CSF) leak

ID:2674103444

linkhttp://spinalcsfleak.org calendar_today23-07-2014 15:08:07

3,5K Tweets

2,5K Followers

597 Following

Katie Tyrrell Weimann(@KathrynWeimann) 's Twitter Profile Photo

I can't wait to to support Spinal CSF Leak Foundation May 26 - June 8! I’ll be aiming for 150 min of walking the trails of beautiful Boulder County to help raise money & awareness for .
spinalCSFleak

account_circle
WouterSchievink(@WouterSchievink) 's Twitter Profile Photo

CSF leaks caused by interventions to treat CSF leaks. This young woman suffered a sacral CSF leak from a Tarlov cyst that was treated with a lumbar drain. The original leak was sealed but the CSF leak caused by be lumbar drain persisted ⁦spinalCSFleak

account_circle
spinalCSFleak(@spinalCSFleak) 's Twitter Profile Photo

This year’s duradash® is almost upon us! Our duradash® toolkit has lots of helpful info to aid in spreading the word about your campaign, including email & social media templates, & even a sample should you wish to alert the media!

Check it out here: spinalcsfleak.org/duradash/toolk…

This year’s duradash® is almost upon us! Our duradash® toolkit has lots of helpful info to aid in spreading the word about your campaign, including email & social media templates, & even a sample should you wish to alert the media! Check it out here: spinalcsfleak.org/duradash/toolk…
account_circle
NORD(@RareDiseases) 's Twitter Profile Photo

From May 26 - June 8, join spinalCSFleak Foundation's , a community challenge where people participate in any activity appropriate for their current health state to raise awareness about . Check it out here: duradash.causevox.com

account_circle
Lalani Carlton Jones(@NeuroradLal) 's Twitter Profile Photo

Great scientific spine imaging intervention session The American Society of Neuroradiology with CSF leak expert Thien Huynh and rising star Emma Sechrist presenting interesting and important CSF leak work 🤩👏🏾👏🏾

Great scientific spine imaging intervention session @TheASNR #ASNR2024 with CSF leak expert @ThienHuynh15 and rising star @EmmaSechrist presenting interesting and important CSF leak work 🤩👏🏾👏🏾
account_circle
Spinal CSF Leak Canada Charitable Organization(@SpinalCSFCanada) 's Twitter Profile Photo

Our community mourns the loss of a beloved member, a fighter whose spirit inspired us all. Connie fought bravely against the challenges brought on by spinal CSF leak.

Rest in peace, dear Connie. Your memory will forever be cherished within our community.

account_circle
spinalCSFleak(@spinalCSFleak) 's Twitter Profile Photo

We are deeply saddened to share the news that a wonderful member of our community, Connie Rim, passed away on May 11, 2024. We will always remember her generosity of spirit, her fierce advocacy, and her compassion for others with spinal CSF leak.
spinalcsfleak.org/in-memoriam-co…

We are deeply saddened to share the news that a wonderful member of our community, Connie Rim, passed away on May 11, 2024. We will always remember her generosity of spirit, her fierce advocacy, and her compassion for others with spinal CSF leak. spinalcsfleak.org/in-memoriam-co…
account_circle
CSF Leak Association(@csfleakuk) 's Twitter Profile Photo

CSF leak can devastate QoL & mental health of those affected. Three of the recent papers published on the subject. Please share them with the world

bmjopen.bmj.com/content/12/1/e…

neurology.org/doi/10.1212/CP…

…alofheadacheandpain.biomedcentral.com/articles/10.11…

#MentalHealthAwarenessWeek CSF leak can devastate QoL & mental health of those affected. Three of the recent papers published on the subject. Please share them with the world #csfleak bmjopen.bmj.com/content/12/1/e… neurology.org/doi/10.1212/CP… …alofheadacheandpain.biomedcentral.com/articles/10.11…
account_circle
Diogo Edelmuth(@dgleao) 's Twitter Profile Photo

Not usual for it to take this long to fill a CVF, but a pretty definitive uptake.

Only insisted because had suspicion based on a previous CTM. Otherwise would just be a negative exam

Not usual for it to take this long to fill a CVF, but a pretty definitive uptake. Only insisted because had suspicion based on a previous CTM. Otherwise would just be a negative exam
account_circle
spinalCSFleak(@spinalCSFleak) 's Twitter Profile Photo

Register today for and join us in raising awareness and funds for spinal CSF leak! Any movement or activity that you enjoy & is appropriate for your current state of health counts towards your duradash® goal.
➡️➡️➡️ SIGN UP HERE! ➡️➡️➡️ duradash.causevox.com

Register today for #duradash2024 and join us in raising awareness and funds for spinal CSF leak! Any movement or activity that you enjoy & is appropriate for your current state of health counts towards your duradash® goal. ➡️➡️➡️ SIGN UP HERE! ➡️➡️➡️ duradash.causevox.com
account_circle
Peter Kranz(@PeterGKranz) 's Twitter Profile Photo

📑 New Paper Alert #2 📑

“We found…yield of dCTM to be similar to [DSM] among patients with positive brain imaging. No CVFs were identified in patients with negative brain imaging; epidural CSF leaks accounted for all cases of patients who had SIH with negative brain imaging.”

📑 New Paper Alert #2 📑 “We found…yield of dCTM to be similar to [DSM] among patients with positive brain imaging. No CVFs were identified in patients with negative brain imaging; epidural CSF leaks accounted for all cases of patients who had SIH with negative brain imaging.”
account_circle
Peter Kranz(@PeterGKranz) 's Twitter Profile Photo

📑 NEW PAPER ALERT 📑

From Ian Mark et al Mayo Clinic Radiology

“CONCLUSIONS: Our study provides further evidence that skull base and spinal CSF leaks represent distinct pathophysiologies and present with different brain MRI findings.”

ajnr.org/content/early/…

📑 NEW PAPER ALERT 📑 From @iantmark et al @MayoRadiology #SIH “CONCLUSIONS: Our study provides further evidence that skull base and spinal CSF leaks represent distinct pathophysiologies and present with different brain MRI findings.” ajnr.org/content/early/…
account_circle
Matt Bender(@mtbendermd) 's Twitter Profile Photo

Nice images from a recent prone digital spinal myelography for with spinal longitudinal CSF collection. trickier than for CSF-venous fistula bc there is no sink clearing contrast from the epidural space. You've got one shot!

SNIS Info AJNR spinalCSFleak

account_circle
Jodi Ettenberg(@legalnomads) 's Twitter Profile Photo

On Sat, Spinal CSF Leak Canada Charitable Organization put on the 1st spinal CSF leak conference in Canada. Below, some screenshots of slides & thoughts on some of the talks. 🧵

(For those new to leaks: SIH = spontaneous intracranial hypotension. The conf did have talks for non-spontaneous leaks though!)

On Sat, @SpinalCSFCanada put on the 1st spinal CSF leak conference in Canada. Below, some screenshots of slides & thoughts on some of the talks. 🧵 (For those new to leaks: SIH = spontaneous intracranial hypotension. The conf did have talks for non-spontaneous leaks though!)
account_circle