Brittle Bone Society(@BrittleBoneUK) 's Twitter Profileg
Brittle Bone Society

@BrittleBoneUK

Supporting people with Osteogenesis Imperfecta (OI). Providing events, CPD meetings, supporting & funding research. Tweets do not mean endorsements.

ID:240203784

linkhttps://linktr.ee/brittlebonesociety calendar_today19-01-2011 11:41:29

3,8K Tweets

2,3K Followers

888 Following

Brittle Bone Society(@BrittleBoneUK) 's Twitter Profile Photo

Max Edney will be live on Chris Evans’ breakfast show this Thursday to discuss his latest fundraising event, OI, & the BBS. Find all the details here: instagram.com/p/C6_F1QfK3KD/ πŸ’™ To donate click the link in our bio 🚴

Max Edney will be live on Chris Evans’ breakfast show this Thursday to discuss his latest fundraising event, OI, & the BBS. Find all the details here: instagram.com/p/C6_F1QfK3KD/ πŸ’™ To donate click the link in our bio 🚴
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Brittle Bone Society(@BrittleBoneUK) 's Twitter Profile Photo

Did you know that our Research Grant Scheme is open for applications? If you would like to apply, be quick, the deadline is the end of May! If you are a researcher within the OI field, you can find more information and apply here: brittlebone.org/research-studi… πŸ’™βœ¨

Did you know that our Research Grant Scheme is open for applications? If you would like to apply, be quick, the deadline is the end of May! If you are a researcher within the OI field, you can find more information and apply here: brittlebone.org/research-studi… πŸ’™βœ¨
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Gareth Cumming Adventure Award Winner 2023 Martha Harris has given us an update on what the grant helped her achieve. Well done Martha on a successful first year at the University of Alabama! ❀✨

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Chris Howell(@christophhowell) 's Twitter Profile Photo

Monday 27th May John's Garden is open in aid of Brittle Bone Society inspired by recent visitor Emily, who was born with Osteogenesis imperfecta (OI). Emily is currently walking one mile each day to earn her personal challenge badge at scouts. ITV News Central BBC News Midlands

Monday 27th May @JohnsGardenAsh is open in aid of @BrittleBoneUK inspired by recent visitor Emily, who was born with Osteogenesis imperfecta (OI). Emily is currently walking one mile each day to earn her personal challenge badge at scouts. @ITVCentral @bbcmtd
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Brittle Bone Society(@BrittleBoneUK) 's Twitter Profile Photo

Thank you to delegates who joined us at VOICE Bristol 2024, we know you will have made memories & new friendships! BBS want to thank the speakers & facilitators who helped make the event great & acknowledge our funders at Ultragenyx!

Thank you to delegates who joined us at VOICE Bristol 2024, we know you will have made memories & new friendships! BBS want to thank the speakers & facilitators who helped make the event great & acknowledge our funders at Ultragenyx!
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Jennifer, Mum of Jonah Lee, spoke to us about what Wishbone Day means to her and what she would like others to know about OI. Comment below what Wishbone Day means to you! Help us spread awareness of OI this Wishbone Day by sharing with the hashtag πŸ’™βœ¨

Jennifer, Mum of Jonah Lee, spoke to us about what Wishbone Day means to her and what she would like others to know about OI. Comment below what Wishbone Day means to you! Help us spread awareness of OI this Wishbone Day by sharing with the hashtag #WishboneDay πŸ’™βœ¨
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Brittle Bone Society(@BrittleBoneUK) 's Twitter Profile Photo

Did you know that OI is more than just bones that break? People with OI may have other symptoms such as blue sclerae or Dentinogenesis Imperfecta. Help us spread awareness of OI this Wishbone Day by sharing with the hashtag πŸ’™βœ¨

Did you know that OI is more than just bones that break? People with OI may have other symptoms such as blue sclerae or Dentinogenesis Imperfecta. Help us spread awareness of OI this Wishbone Day by sharing with the hashtag #WishboneDay πŸ’™βœ¨
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Brittle Bone Society(@BrittleBoneUK) 's Twitter Profile Photo

Wishbone Day is about raising awareness of OI. As a rare disease, many people are unaware of OI & its intricacies. We have many educational resources which spotlight aspects of OI on our website. Help us spread awareness this Wishbone Day by sharing with the hashtag

Wishbone Day is about raising awareness of OI. As a rare disease, many people are unaware of OI & its intricacies. We have many educational resources which spotlight aspects of OI on our website. Help us spread awareness this Wishbone Day by sharing with the hashtag #WishboneDay
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Niveda Kiridaran(@nivedakiri) 's Twitter Profile Photo

I have raised just over half of my target. I can't believe I have raised raised so much. Thank you all so much! Please keep donating, every little bit helps. πŸ™β€οΈ
justgiving.com/page/niveda

I have raised just over half of my target. I can't believe I have raised raised so much. Thank you all so much! Please keep donating, every little bit helps. πŸ™β€οΈ justgiving.com/page/niveda #charity #support #community
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Brittle Bone Society(@BrittleBoneUK) 's Twitter Profile Photo

Max is cycling a marathon to fundraise for the BBS, and he enlisted the help of the Chris Evans Breakfast Radio Show who gave us a great boost live on air in support of his amazing fundraiser.

You can donate here: rb.gy/z69m1h . Good luck & thank you Max!

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Laura Pilkington(@laurapilkie) 's Twitter Profile Photo

Looking for participants for my undergraduate research project on the new physical activity guidelines for children & young people with a disability ⬇️

RTs Appreciated, if interested please email me - [email protected]

Looking for participants for my undergraduate research project on the new physical activity guidelines for children & young people with a disability ⬇️ RTs Appreciated, if interested please email me - 40401048@live.napier.ac.uk
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Brittle Bone Society(@BrittleBoneUK) 's Twitter Profile Photo

It’s not long now until ! Whether its wearing yellow, running an event or sharing our posts, every action helps to raise awareness of OI. We have shareable graphics and more on our website that can help spread awareness, just click here: brittlebone.org/how-can-you-he… πŸ’™βœ¨

It’s not long now until #WishboneDay! Whether its wearing yellow, running an event or sharing our posts, every action helps to raise awareness of OI. We have shareable graphics and more on our website that can help spread awareness, just click here: brittlebone.org/how-can-you-he… πŸ’™βœ¨
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Brittle Bone Society(@BrittleBoneUK) 's Twitter Profile Photo

It’s your last day to sign up to our Wheels, Walks & Wanders Campaign! This May & for the 31 days in the month, lace up your shoes, hop on your bikes, dive into the pool, or roll along in wheelchairs to raise funds for the BBS! To sign up, click rb.gy/gvrjkv πŸ’™βœ¨

It’s your last day to sign up to our Wheels, Walks & Wanders Campaign! This May & for the 31 days in the month, lace up your shoes, hop on your bikes, dive into the pool, or roll along in wheelchairs to raise funds for the BBS! To sign up, click rb.gy/gvrjkv πŸ’™βœ¨
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Brittle Bone Society(@BrittleBoneUK) 's Twitter Profile Photo

Less than a week until our VOICE Youth Event, a fun gathering for young people with OI! Join us in Bristol from the 3rd to 5th May for an entertaining experience for 18–35 year olds. Don't miss this opportunity to connect, learn, & grow. Sign up here: brittlebone.org/events/voice-y… πŸ’™βœ¨

Less than a week until our VOICE Youth Event, a fun gathering for young people with OI! Join us in Bristol from the 3rd to 5th May for an entertaining experience for 18–35 year olds. Don't miss this opportunity to connect, learn, & grow. Sign up here: brittlebone.org/events/voice-y… πŸ’™βœ¨
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Niveda Kiridaran(@nivedakiri) 's Twitter Profile Photo

We are so close to finishing the . I have already raised so much. Thank you all so much! Please keep donating by clicking the link below. Every little bit helps. πŸ™β€οΈ

justgiving.com/page/niveda

We are so close to finishing the #fundraiser. I have already raised so much. Thank you all so much! Please keep donating by clicking the link below. Every little bit helps. πŸ™β€οΈ #charity #support #community justgiving.com/page/niveda
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Brittle Bone Society(@BrittleBoneUK) 's Twitter Profile Photo

Will you be joining us on the 6th of May to raise awareness of OI? We have various resources on our website for you to use and share this Wishbone Day. Pop over to our website now for inspiration for how YOU can raise awareness of OI: brittlebone.org/how-can-you-he… πŸ’™βœ¨

Will you be joining us on the 6th of May to raise awareness of OI? We have various resources on our website for you to use and share this Wishbone Day. Pop over to our website now for inspiration for how YOU can raise awareness of OI: brittlebone.org/how-can-you-he… πŸ’™βœ¨
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Brittle Bone Society(@BrittleBoneUK) 's Twitter Profile Photo

Did you know that there’s going to be a James Bond-themed murder mystery party at our VOICE Youth Event! We’re super excited for it, and so is Angie! Get involved with the drama and fun by signing up to our VOICE Youth Event here: brittlebone.org/events/voice-y… πŸ’™βœ¨

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Brittle Bone Society(@BrittleBoneUK) 's Twitter Profile Photo

Thank you & well done to our incredible London Marathon runners Sian (4:06:00) & Selena (6:30:15)!! They've both done a great job fundraising, with Selena raising a total of Β£2370 & Sian raising Β£1,826. To donate to both of their fundraisers, click the link in our bio πŸ’™βœ¨

Thank you & well done to our incredible London Marathon runners Sian (4:06:00) & Selena (6:30:15)!! They've both done a great job fundraising, with Selena raising a total of Β£2370 & Sian raising Β£1,826. To donate to both of their fundraisers, click the link in our bio πŸ’™βœ¨
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