Alleviate Pain Data Hub
@Alleviate_Data
Alleviate: The Advanced Pain Discovery Platform (APDP) Data Hub. Working with #patientinvolvement partners to utilise data in pain research & improve pain care.
ID:1489259006174502913
https://alleviate.ac.uk/ 03-02-2022 15:27:46
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Joining forces with PAINSTORM Consortium For Neuropathic Pain, this workshop 'Expressive Creative Flow' offers a calming space where art and pain converge. Taking place at the Dundee Botanic Gardens on Tuesday afternoon - register here ➡ buff.ly/4aW3g7i
Health Informatics Centre (HIC) UoD Medicine Advanced Pain Discovery Platform
🗣️ Your voice matters!
Have your say and complete our short survey about our draft Patient and Public Involvement Strategy.
Share your thoughts and help shape the future of health data research: hubs.li/Q02s3qTJ0
#HealthData #PublicEngagement #MakeADifference
Members of the Alleviate team thoroughly enjoyed attending the NHS Research Scotland and CSO(Health)Scotland event on #PublicInvolvement last week at the V&A Museum in Dundee. Read more in our latest blog post ▶️ buff.ly/3IOcBSU
Health Informatics Centre (HIC) UoD Medicine Advanced Pain Discovery Platform
I'm supporting Neurodiversity Celebration Week 2024! 📢
Neurodiversity Celebration Week is a worldwide initiative that challenges stereotypes and misconceptions about neurological differences 🧠🌈👀😃
#NeurodiversityCelebrationWeek #NeurodiversityWeek #NCW #ThisIsND
🎊 Last week, we celebrated the second anniversary of the launch of our #SharedCommitment to #PublicInvolvement .
To mark this, we're reflecting on our work to-date to deliver this joint pledge alongside @HDR_latest and other leading orgs.
Learn more 👇
hubs.li/Q02p_1r50
Access to treatment for migraine will be debated by MPs in Parliament.
Rob Music from The Migraine Trust told #BBCBreakfast millions of people suffer with chronic pain
bbc.co.uk/news/av/newsbe…
Nice talk from Rosemary J Hollick and her PPI member covering many things. I particularly liked the discussion around investing in your PPI members and not just mining them for their lived experience knowledge #PatientInvolvement
The PPIE members of CAPE have been incredible in sharing their own personal experiences - genuinely moving #patientinvolvement NHS Research Scotland
Workshop 2A’s topic at today’s #PPI event returns to ‘Working with underserved groups’. Heather Potter from Robert Gordon University (RGU), Deirdre M Harrington from Charlie Strathclyde , Dr Jane Grassie from NHS Fife, and Rubina Zafar from SenseCheQ and Judith Fisher lead the session. #PublicInvolvement
This was a very interesting talk highlighting the benefits and considerations around patient involvement. My takeaway was making #patientinvolvement meaningful and not tokenistic, which is the approach we have on Alleviate
Great to have such an important event here in Dundee. Alleviate's PPIE coordinator Judith will lead a workshop later today. #PublicInvolvement
Health Informatics Centre (HIC) UoD Medicine Advanced Pain Discovery Platform
👋 March is #Endometriosis Awareness Month! SHARE stands with all women battling this disease.
📢 Take part in health research today and help researchers discover a cure for all illnesses, including endometriosis.
✅ Register now at registerforshare.org
Join us on the 26th of June for our 20th Anniversary celebrations! Find out more about the event and book your place here ➡️buff.ly/4a0NbNs #healthdataresearch #DataScience #happyHICday
UoD Medicine
You can review the full list of winners for the 2024 Health Data Research UK (HDR UK) Annual Awards and Recognition here ▶️ buff.ly/4c18Vud It is honour to have been recognised in the hidden roles category. Thank you again to #HDR_UK for highlighting the value of these roles in research 😊
A great presentation at the Health Data Research UK (HDR UK) Conference from HIC's Chris Cole on SATRE. Find out more about this project, highlighting the need for change in handling sensitive data: dareuk.org.uk/driver-project… #HDRUKConference #healthdataresearch #dataonamission UoD Medicine
Powerful presentation from Dr Phil Quinlan, Director of Health Informatics Uni of Nottingham #WeAreUoN, on standardising federated analytics Health Data Research UK (HDR UK) UoD Medicine #HDRUKConference2024 #healthdataresearch #dataonamission
That’s a wrap for the Health Data Research UK (HDR UK) conference. Final photo of our PPIE members - Jillian Beggs & Antony Chuter - from Alleviate Pain Data Hub and formerly CO-CONNECT.l along with HDR CTO Emily Jefferson
Great opening session on day 2 of #HDRUKconference incl. The Software Sustainability Institute Society of RSE (@[email protected]) ELIXIR UK #UKTRE on the importance of software innovation and communities
