Cauda Equina Champions Charity
@caudaequinacesa
We are a patient led organisation working alongside people living with CES. #caudaequinasyndrome #community #education #support
ID:636871394
https://www.championscharity.org.uk/ 16-07-2012 10:44:00
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The impact Chronic Cauda Equina syndrome on the whole person goes well beyond surgery and recovery. Poignant article from JMW Clin Neg Our charity offers funded therapy services to help people adjust and maintain intimate relationships. Thank you for highlighting this 🙏
CES warriors!! Join us for our 2024 CES workshops across England. #CES #caudaequina #caudaequina syndrome #mycesstory #caudaequina championscharity #ihaveces #ceswarrior
Great Western Hospital in Swindon took 11 days for emergency outpatient MRI for Cauda Equina Syndrome that requires emergency operation within 24 hours from MRI! I will pay for the rest of my life for incapability to make better coordination! @hsjnews Royal College of Emergency Medicine Cauda Equina Champions Charity
Cauda Equina Champions Charity We must fight, it's not fair ! I've been in A&E 8 + hours just to be examined and 11 days for MRI. Things need to change because we deserve to be treated like human beings, most of the stories including my was pure bullying and convincing me that I'm good and faking !
Just when you thought there was light at the end of the tunnel? This?????? ☹️ #caudaequinasyndrome #workingtogetherforbetteroutcomes #CESnegligence
Charity member Jon achieving amazing things on his #Ebike in Spain 49 days post op. He sent us this photo of a sign he passed along the way #amazing #holidayspostop #rehab #positivevibes
Paige and Gail networking at Bladder & Bowel UK Symposium today #networking #reachingpatients #caudaequinasyndrome #championscharity #meetingnurses
Champions Connect Helpline
👉championscharity.org.uk/our-services/c…
#caudaequinasyndrome #championscharity #caudaequinaawareness #redflagsofces
#cessupportgroup #bladderandbowels #sciatica #saddlenumbness #pinsandneedles
#cesbuddies #ceshelpline
A new, interactive pathway illustrating best practice for clinicians caring for patients suspected of having Cauda Equina Syndrome was introduced in October 2023. You can view the pathway here - girft-interactivepathways.org.uk/cauda-equina-1/ #ces #caudaequinasyndrome #nhs #a &e #ces pathway
Have you read our book, The Lost Tribe? We would love to hear your feedback 📢.
If you haven't placed an order, you can do so below 👇.
amzn.eu/d/ceDefXI
**All proceeds go directly to the charity**
#TheLostTribe #patientvoice #cespathway #lifewithces
Never miss any of the charity's exciting news again!!
Sign up for our monthly newsletter to keep up to date 👇
championscharity.org.uk/newsletter
#newsletter #championscharity #stayintheloop #caudaequinasyndrome #thelosttribe #redflags #supportmeetings #cesevents #lifewithces
Champions Connect Helpline
👉championscharity.org.uk/our-services/c…
#caudaequinasyndrome #championscharity #caudaequinaawareness #redflagsofces
#cessupportgroup #bladderandbowels #sciatica #saddlenumbness #pinsandneedles
#cesbuddies #ceshelpline
We highly recommend #TheLostTribe , published by Cauda Equina Champions Charity to share personal stories from with lived experience of #CaudaEquinaSyndrome .
This book is a fantastic example of the Cauda Equina Champions Charity's sterling work in raising awareness of this condition.