Lynch Syndrome UK (@lynchsyndromeuk) 's Twitter Profile
Lynch Syndrome UK

@lynchsyndromeuk

Providing information and support for people with Lynch Syndrome. Raising public awareness of this genetic condition.

ID: 2709170899

linkhttp://www.lynch-syndrome-uk.org calendar_today05-08-2014 12:03:42

2,2K Tweet

1,1K Followers

753 Following

BJ, MScN BScN RN (@iheartbobross) 's Twitter Profile Photo

#Lynchsyndrome survey for #Uk and Ireland LS carriers. Still looking for people to participate! I have 105 now (132 total but the ones not in Uk/Ireland I can’t use their responses).There’s an open text box at the end, I really value the commentary shared. qualtricsxm2t8gtw5xb.qualtrics.com/jfe/form/SV_7Q…

Prof Ranjit Manchanda (@profmanchanda) 's Twitter Profile Photo

We find that overall provision of high-quality information is low, with large variation in quantity and quality across websites providing BRCA information. There is a need for improved accessible and high-quality online BRCA information provision

Lauramonje 💙 (@lauramongar) 's Twitter Profile Photo

📢 Participants needed for a friendly interview!🧬 Do you use NHS services in the UK and: 🌈 Have you been offered genetic testing for inherited colorectal cancer? (awaiting results/undecided) 🌈 Have an inherited cancer syndrome like #Lynch or #Polyposis? 📧 Contact Laura at

📢 Participants needed for a friendly interview!🧬

Do you use NHS services in the UK and:
🌈 Have you been offered genetic testing for inherited colorectal cancer? (awaiting results/undecided)
🌈 Have an inherited cancer syndrome like #Lynch or #Polyposis?

📧 Contact Laura at
NHS South East Genomic Medicine Service (@segenomics) 's Twitter Profile Photo

Get your places booked for our two part online learning about Lynch Syndrome & how to set up local #Lynch screening. This is for all our NHS colleagues working with #colorectal or #endometrial cancer patients in the South East. Get your ticket here! bit.ly/469SvNT

Get your places booked for our two part online learning about Lynch Syndrome & how to set up local #Lynch screening.

This is for all our NHS colleagues working with #colorectal or #endometrial cancer patients in the South East.

Get your ticket here!
bit.ly/469SvNT
neil ryan (@neilajryan) 's Twitter Profile Photo

A topic close to my heart. Molecular classification in endometrial cancer. So good to see this brought to a wide audience of gynae cancer clinicians. No more type 1/2. Thank you Dr Cross ⁦Liverpool Women's⁩ ⁦BGCSConference

A topic close to my heart. Molecular classification in endometrial cancer. So good to see this brought to a wide audience of gynae cancer clinicians. No more type 1/2. Thank you Dr Cross ⁦<a href="/LiverpoolWomens/">Liverpool Women's</a>⁩ ⁦<a href="/BGCSConference/">BGCSConference</a>⁩
neil ryan (@neilajryan) 's Twitter Profile Photo

This is very much the point in recurrent endometrial cancer - we need to think about the use adj therapy to reduce the need for surgical radically. We need trial data to help us - this would need to be international but could be done ⁦FIGO HQ

This is very much the point in recurrent endometrial cancer - we need to think about the use adj therapy to reduce the need for surgical radically. We need trial data to help us - this would need to be international but could be done ⁦<a href="/FIGOHQ/">FIGO HQ</a>⁩
neil ryan (@neilajryan) 's Twitter Profile Photo

It is so good to see Vanitha Sivalingam ensuring #vulvalcancer is getting the attention it needs BGCSConference. A lot of learning including the benefit of VAC and impact of the groins study. Liverpool Women's

It is so good to see <a href="/drvsivalingam/">Vanitha Sivalingam</a> ensuring #vulvalcancer is getting the attention it needs <a href="/BGCSConference/">BGCSConference</a>. A lot of learning including the benefit of VAC and impact of the groins study. <a href="/LiverpoolWomens/">Liverpool Women's</a>
Roberta Horgan 🇮🇪 (@horganroberta) 's Twitter Profile Photo

You do not want to miss BJ, MScN BScN RN presentation at #EHTG2024! 🤩 Do #LynchSyndrome carriers feel they receive adaquate support when interacting with/accessing healthcare? 🤔 BJ did a fantastic job engaging the patient community to find out. 👀 #HereditaryCancer #PPI

Health Data Insight (@hdi_cambridge) 's Twitter Profile Photo

🚀Excited to start work on the Endometrial Cancer Audit Pilot in collaboration with The Eve Appeal, Peaches Womb Cancer Trust, BGCS, and The BAGP! Focusing on raising awareness & assessing variation in the management & outcomes of endometrial cancer in England👉tinyurl.com/7axntdzw

🚀Excited to start work on the Endometrial Cancer Audit Pilot in collaboration with <a href="/eveappeal/">The Eve Appeal</a>, <a href="/peachestrust/">Peaches Womb Cancer Trust</a>, <a href="/BGCS_org/">BGCS</a>, and <a href="/BAGPGynPath/">The BAGP</a>! Focusing on raising awareness &amp; assessing variation in the management &amp; outcomes of endometrial cancer in England👉tinyurl.com/7axntdzw
Andrew Beggs (@adbeggs) 's Twitter Profile Photo

Just seen another patient who (with their permission to discuss) has had a complete clinical response to immunotherapy we managed to get on compassionate use with their recurrent colorectal cancer in Lynch Syndrome. Lynch Syndrome UK lynch syndrome irl This treatment works! But

neil ryan (@neilajryan) 's Twitter Profile Photo

‼️🚨I am running a study looking at a urine based test for womb cancer to be used for gynaecological surveillance in #lynchsyndrome. If you have a womb & Lynch syndrome please email [email protected] to participate. We just need a couple of urine samples🚨‼️Lynch Syndrome UK

neil ryan (@neilajryan) 's Twitter Profile Photo

A remarkable team effort - led by Dr Esther Moss and DrJoMorrison on behalf of the BGCS. Guidance that is evidence based, accessible and implementable. Informs and empowers patients. Drives better practice from clinicians and health care mangers. Excellent

EHTGtweets (@ehtgtweets) 's Twitter Profile Photo

Join us at the EHTG Meeting 2024 for a pivotal session on cancer prevention. Don’t miss the opportunity to hear Matthias Kloor as he delves into pioneering immune prevention strategies for Lynch syndrome, revealing how we can utilize the immune system to prevent hereditary cancer

Join us at the EHTG Meeting 2024 for a pivotal session on cancer prevention. Don’t miss the opportunity to hear Matthias Kloor as he delves into pioneering immune prevention strategies for Lynch syndrome, revealing how we can utilize the immune system to prevent hereditary cancer
NIHR Manchester Biomedical Research Centre (@manchesterbrc) 's Twitter Profile Photo

🎉Well done to Prof Emma Crosbie Emma Crosbie on winning ‘PhD Supervisor of the Year’ at the 2024 Postgrad Awards for exceptional enthusiasm, support & dedication to helping her students succeed while advocating for women’s health through innovative NHS screening campaigns🌟

🎉Well done to Prof Emma Crosbie <a href="/ProfEmmaCrosbie/">Emma Crosbie</a> on winning ‘PhD Supervisor of the Year’ at the 2024 Postgrad Awards for exceptional enthusiasm, support &amp; dedication to helping her students succeed while advocating for women’s health through innovative NHS screening campaigns🌟