Difficult issues need discussing. Thank you Dr. Steffi Oesterreich & patient advocates for taking the time to share them.

Health professionals, can you help develop new resources for patients with a #Lobular #BreastCancer diagnosis. Please contact Hilary Brown if interested [email protected]
 
Oxford Brookes University

We want you to know about the signs and symptoms of #metastaticbreastcancer .

Please share our infographics to highlight what everyone should be aware of if you've had a primary breast cancer diagnosis.

#2ndsonthe2nd #MetastaticMay #severitymodifier

Could you share your experience and help shape our work to create positive change? We’re gathering insight into the needs of communities who face inequalities in their experience of breast cancer.

If you could help, get in touch to find out more: [email protected]

Good to luck everyone running the London Marathon today, especially those raising funds for #BreastCancer research and support. Thank you, you’ve got this! #LondonMarathon #Fundraising

Fantastic meeting and shared learning. Great to be part of the #Lobular #BreastCancer conversations and thank you to the organisers. #ILC

Can you help get the remaining signatures needed & ensure women with #TripleNegativeBreastCancer get the treatment they need? Just over 5,000 more needed. action.breastcancernow.org/enhertu-emerge…

Breast Cancer Now
#TNBC

We’re delighted to be collaborating with researchers at Oxford Brookes, dmuleicester & University of Aberdeen to develop support resources to help with #Lobular recurrence. Find out how you can get involved if you have had a #Lobular diagnosis at buff.ly/3xmq7dP

Out now on 'So Now I've Got Breast Cancer' - Everything you need to know about Radiotherapy with Jo and Naman from Rad Chat
Listen now apple.co/4aLsUf4

Plus there's the weekly poem from Donna Ashworth

BreastCancer Chat WW #BCCWW LobularBCUK Breast Cancer Now

Powerful film from Breast Cancer Now about #SecondaryBreastCancer featuring LBCUK’s wonderful Ruth Warden who has secondary #LobularBreastCancer . We love you Ruth ❤️ #SecondaryLobular

Crazy to think that this is a pilot project and not just standard practice across the NHS!
#EDI
#Equality

Join our first free Virtual #Lobular Meetup 7pm Wednesday 15 May in partnership with @FutureDreams & connect other women diagnosed with this distinct disease. buff.ly/3U5SGVT

Are you interested in helping to develop a new resource to support people in recognising and reporting signs and symptoms of #LobularBreastCancer recurrence and to address fears related to recurrence? Find out more at buff.ly/3xmq7dP Oxford Brookes #BreastCancerRecurrence

Thank you to this collaboration, including the incredible & compassionate work being conducted by Christine Desmedt & KarenVanBaelen for #LobularBreastCancer , to increase understanding of #metastatic disease through #RapidAutopsy programmes.

Great podcast on #LobularBreastCancer . Thank you for sharing and Adrian Lee for remembering incredible advocate Leigh Pate.

On the 22nd, remembering the 22 people diagnosed everyday in the UK with #LobularBreastCancer . Thank you Penny Lee & Islandmagee Riding Centre, Northern Ireland for your #22ADayUK campaign image. Penny was diagnosed with Lobular in 2022.

Find out more buff.ly/3TjBx9v

“Urgent & collective efforts are needed to include #ILC in trials” Thank you to everyone involved…action needed now to include #Lobular patients in trials. Honoured to be involved in this #research & collaborative work for change #Lobular BreastCancer

Fabulous to see researcher Christine Desmedt, pathologist Anne Vincent-Salomon and oncologist Alicia Okines The Royal Marsden NHS Foundation Trust leading the #Lobular voice at #EBCC2024 #ILC ELBCC

Thank you to the researchers, health professionals & patient advocates representing the #LobularBreastCancer voice at #EBCC2024 ELBCC Lobular Breast Cancer IRL #LivingWithLobular Alicia Okines from The Royal Marsden NHS Foundation Trust

Thank you to researchers Rachael Natrajan and Sarah Nash, and Consultant Oncologist Prof Elly Sawyer for info on their research into aggressive Lobular tumours buff.ly/3TCXl1o Natrajan Lab ICR King's College London