In “Living in My Box – Coping with Rare Disease,” OhSarcWarrior shares how he balances needs, wants, and life with #sarcoidosis .

Read his story & 59 others in Kaleidoscope #RareDisease Stories, now available on Amazon.
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#SarcoidosisAwarenessMonth #KaleidoscopeRare #SaySarcoidosis

Float Like a Buttahfly 🦋 Kerry Wong SarcoidosisUK Such an honour to be part of this vital and important book

A granuloma is a cluster of white blood cells that have been “walled off” from the rest of your body to try to protect you from something your immune system thought was harmful (Cleveland Clinic)
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#SarcoidosisAwarenessMonth #sarcoidosis #SarcStrong #SarcWarrior #SaySarcoidosis

The reviews are in! Here's what one reader had to say.

Have YOU gotten your copy of Kaleidoscope #RareDisease Stories? Please review on Amazon or Goodreads.

Not yet? Order yours on Amazon sites worldwide. Proceeds donated to NORD.
~🦋
#KaleidoscopeRare #ZebraStrong 🦓

Chag Pesach Sameach ✡ Happy Passover
Sending out greetings and well wishes to all who celebrate, and wishing for peace and freedom around the world.
~🦋
חַג פֵּסַח שַׂמֵחַ

Sarcoidosis can occur in any organ of the body. In about 90% of patients, #sarcoidosis affects the lungs and/or lymph glands. This is also known as #PulmonarySarcoidosis . The information on this page is for anyone affected by pulmonary sarcoidosis.
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#SarcoidosisAwarenessMonth

On #EarthDay and every day, the earth provides for us, so we've got to do all we can to take care of it, too. What are YOU doing to commemorate this day? How are you being kind to nature?
~🦋
#EarthDay EveryDay

In “ #Sarcoidosis : Snowflakes, Surviving and Self-Advocacy,” Peter Devonald shares how he found comfort in speaking up for himself and others in the sarcoidosis community.
Read his story (& 59 more) in Kaleidoscope #RareDisease Stories.
~🦋
#Sarcoidosis AwarenessMonth SarcoidosisUK

Sarcoidosis can occur in almost any organ. In 5 to 15% of patients with #sarcoidosis , the disease occurs somewhere in the nervous system. This is called #neurosarcoidosis .
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#SarcoidosisAwarenessMonth #SarcLife #SarcStrong #SaySarcoidosis

Columnist Kerry Wong describes how she came to use medical cannabis to treat her chronic pain — and why she's telling readers. buff.ly/4aS1Nz4

#Sarcoidosis is mainly diagnosed in people aged 20 to 40.
Sarcoidosis in children is extremely rare ... but it has been estimated at approximately 0.4 to 1 per 100,000 children. (SarcoidosisUK).
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#Sarcoidosis AwarenessMonth #SarcLife #SarcStrong #SarcWarrior #SaySarcoidosis

For so long, I resisted the idea of #marijuana to ease my symptoms. I'm glad I came around.
sarcoidosisnews.com/columns/my-jou…
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#SarcoidosiAwarenessMonth #sarcoidosis #SarcStrong #SaySarcoidosis #cannabis #ChronicIllness #ChronicPain #MedicalMarijuana BioNews Sarcoidosis News

Double thanks now: to Linda for purchasing Kaleidoscope #RareDisease Stories for her sister, 15-year #SarcoidosisWarrior Carolyn, and to Carolyn for sharing this pic!
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a.co/d/1qhe4Je
#KaleidoscopeRare #sarcoidosis #SarcoidosisAwarenessMonth #SarcStrong #ZebraStrong 🦓

Help us DRIVE awareness on World AUTOimmune & AUTOinflammatory Arthritis Day! If you have an AiArthritis disease, you know someone who does, or have some extra free time that you want to donate to a good cause, you are welcome to join us! #AiArthritisDay

forms.gle/DVcyQQfnVhzkWz…

The reviews are in! Here's what 1 reader had to say.

Have YOU gotten a copy of Kaleidoscope #RareDisease Stories? Please post a review on Amazon or Goodreads.
Not yet? Order on Amazon sites worldwide. Proceeds donated to NORD.
~🦋
#KaleidoscopeRare #PatientStories #ZebraStrong 🦓

Sarcoidosis of the Liver affects the majority of patients with #sarcoidosis (up to 70%). However most of these patients rarely or never show symptoms in the liver. They are known as asymptomatic patients. Find out more below.
~🦋
#SarcoidosisAwarenessMonth SarcoidosisUK

In “Living with Neurosarcoidosis,” Brad shares a lifetime of illness and how he has changed his perspective to enjoy his life with #neurosarcoidosis .

Read his story -- and 59 others -- in Kaleidoscope #RareDisease Stories, now available on Amazon

April is
#Sarcoidosis AwarenessMonth
#Sarcoidosis
#RareDisease

we support the month at @Ataxia_and_me #Ataxia #charity Wales
#Patients helping Patients
#StrongerTogether

cc
Float Like a Buttahfly 🦋 Kerry Wong
Caring Hands Sarcoid

Wales Gene Park