Float Like a Buttahfly 🦋 Kerry Wong
@buttahflyk
Writer & Patient Advocate 🦋
arthritis | chronic illness | disability | invisible illness | rare disease | sarcoidosis
Creator of @kaleidoscoperar🦋
ID:370228061
https://linktr.ee/buttahflyk 08-09-2011 17:28:59
11,5K Tweets
1,0K Followers
1,0K Following
“I am writing a book because there are so many incredible stories that need to be told, and so many people who need to hear (or read) them.” Kaleidoscope 🦋 Rare Disease Stories wants to hear from YOU! Details on how to participate in this exciting, powerful project: bit.ly/kaleidoscopera….
***LAST CALL***
Share your #RareDisease story in the upcoming book:
Kaleidoscope
Rare Disease Stories
told by the people who live them.
*Proceeds to benefit NORD.
bit.ly/kaleidoscopera… for details
[email protected] with questions
~🦋
#RareDisease s Float Like a Buttahfly 🦋 Kerry Wong
The best gift you can give to someone with a #ChronicIllness is support through their struggles.
But if you need something to put into a cute gift bag, here are some great ideas!
~🦋
#ChronicLife #SarcLife #sarcoidosis
BioNews Sarcoidosis News sarcoidosisnews.com/columns/help-h…
63 years ago today, 6-year-old #RubyBridges integrated William Frantz Elementary School in New Orleans, Louisiana.
Many, including white moderates, believed that she was “out of order.”
Thank you to Ruby Bridges and her family for being “out of order.”
YOUR RARE DISEASE STORY NEEDS TO BE TOLD.
And there are people out there, struggling with a #RareDisease diagnosis, who need to read it.
Scan the QR code or visit bit.ly/kaleidoacopera… for details.
Proceeds will be donated to NORD
Brought to you by Float Like a Buttahfly 🦋 Kerry Wong
~🦋
#AdvocateForArthritis
Arthritis Foundation Arthritis Foundation Advocacy
Your voice can make a difference. Find out how!
Arthritis Foundation
New York Advocacy Interest Meeting
Monday, December 11 at 8:00PM
Scan the QR code or visit bit.ly/AFadvocacyNY to register.
~🦋
#LiveYes #NYRocks 🗽
One week to go!
Submit your #RareDisease story by Friday, November 17 to be included in this upcoming book.
All details available at bit.ly/kaleidoscopera…
~🦋
#RareDisease s #RARE #RarePatientVoice #RareDisease Stories #RarePatientExperience #dazzle4rare #WeAreRare #ZebraStrong
#Fibromyalgia and electric shock pain aka paresthesia: What is it? What does it feel like? Why does it happen? This type of #pain typically manifests with nerve compression or injury. Learn about it: myseveralworlds.com/2023/08/11/fib…
#NERVEmber #GoOrange #CPP #ChronicPain #MySeveralWorlds
I'm so excited and proud to show off that MY #rheum atologist is the Medical Honoree for this year's #JingleBellRun !
Support Dr. Reyes Thomas and her team: events.arthritis.org/participant/Jo…
(& support me and mine at bit.ly/JBRbuttahflyk)
~🦋
#arthritis #AiArthritis #rheum atology #rheum
Ten years ago, my life changed forever. What I've learned since then could fill a book ... but for now, we'll go with a column. 😉
sarcoidosisnews.com/columns/lesson….
~🦋
BioNews Sarcoidosis News
#ChronicIllness #disability #RareDisease
#arthritis #sarcoidosis #SmallFiberNeuropathy
We've got exactly one month (minus a few hours) until the @arthritisfoundation #JingleBellRun in Westchester.
Visit bit.ly/JBRbuttahflies to register or make a donation.
~🦋
#AdvocateForArthritis #arthritis #ArthritisWarrior #ChampionOfYes #LiveYes #RheumChampion #JBR
Feliz Dia de los Muertos!
On #DiaDeLosMuertos , it is believed that the spirits of the dead return home to spend time with their relatives. A really beautiful idea - our loved ones are never really gone, as long as we remember them.
Learn more at mexicanmuseum.org/dia-de-los-mue….
~🦋
It's not November, it's #NERVEmber : #InternationalNervePainAwarenessMonth .
NERVEmber®, hosted by International Pain Foundation®, brings awareness to 150+ conditions that have #NervePain as a symptom.
~🦋
#dysautonomia #fibromyalgia #MeralgiaParesthetica #radiculopathy #SmallFiberNeuropathy
Happy Halloween!
Skip the tricks. Here's a great treat instead:
Submit your rare disease story by 11/17 to be included in this upcoming book.
Join the kaleidoscope of rare voices. bit.ly/kaleidoscopera…
~ 🦋
#RareDisease #RareDisease Stories #RarePatientVoice NORD
Happy Halloween!
It's Trick or Treat - Chronic Illness Edition
Tricks that #ChronicIllness plays on us
Treats that come with #ChronicLife
What would YOU add to the lists?
~🦋
The #sarcoidosis community has lost a valued friend and brother.
Charlton Harris, fellow #SarcoidosisWarrior and columnist at Sarcoidosis News, has passed away. He leaves us with his optimism, his advice, and his warm heart.
Rest in peace, Charlton.
~🦋
sarcoidosisnews.com/columns/in-mem…
Your #RareDisease story needs to be told.
And there are people out there, struggling, who need to read it.
Share your story in this upcoming book.
Visit bit.ly/kaleidoscopera… for details
Brought to you by Float Like a Buttahfly 🦋 Kerry Wong
~🦋
NORD #RareDisease s #ShowYourStripes #ZebraStrong
Join the #kaleidoscope of rare voices. Submit your story for the upcoming book:
#Kaleidoscope
Rare Disease Stories
For details, visit bit.ly/kaleidoscopera…
*Proceeds to benefit NORD.
Brought to you by Float Like a Buttahfly 🦋 Kerry Wong
~🦋
#RareDisease #WeAreRareFamily #ZebraStrong 🦋