📢 Do not miss our webinar on 'New EU HTA Regulations and Implications for Patients' by MPE and
Acute Leukemia Advocates Network (ALAN) on 22 May at 15:00 CEST.

Learn from Béla Dajka, Policy Officer at the European Commission.
Register now here: mpeurope-org.zoom.us/webinar/regist…

📅 From 4 to 5 May, Claudia Louati, Head of Policy at EPF and Valentina Strammiello, Director of Programmes at EPF attended the MPE Masterclass 2024, organised by Myeloma Patients Europe.

During their interventions, they discussed #HTA and access to healthcare in the EU!

Delighted to be part of this important session Myeloma Patients Europe masterclass in Madrid!

Access to supportive care, including #rehabilitation , psychological support, nutrition and specialist nursing care, increasingly crucial to living well with myeloma

#RightToRehab

As the #MPEMasterclass comes to an end, MPE´s Head of Medical Education and Scientific Engagement, Solène Clavreul, is speaking about the MPE Clinical Trial Navigator.

You can learn more about the #MPENavigator here: navigator.mpeurope.org/en

Diane Loening-Martens wrapping up our last session of the #MPEMasterclass : “Access to supportive care in cancer is our right. And we need to demand that and fight for it.”
#myeloma #PatientAdvocacy

The #MPEMasterclass panel discussion on supportive care for #myeloma and #ALamyloidosis patients is going on right now.

Experts Surabhi Chaturvedi, Dr. Orla McCourt, Dr. Mirjana Rajer and Christine Skeet are sharing insights and best practices.

#SupportiveCare

This weekend attending #MPEMasterclass 2024. Empowering #myeloma advocacy across Europe. Congratulations!!! Myeloma Patients Europe
Absolutely interestering topics with expert speakers. Dr. Albert Oriol from Institut Català d'Oncologia shared the latest updates on treatments Sanofi España Campus Sanofi

Second day at the #MPEMasterclass kicks off with a discussion on the EU Health Technology Assessment Regulation (HTA) with Valentina Strammiello, Director of Programmes at European Patients' Forum, and Karen Facey, Senior Advisor at FIPRA Public Affairs.

#EURegulation #MPEMasterclass

📊 Attendees are learning about member programmes and MPE projects in our poster presentations and info stands! If you are at the #MPEMasterclass 2024 join us now!

Addressing the needs and challenges of young #myeloma patients is important.

If you are a young (under 55 years old) patient, you can join Myeloma Patients Europe ’s European Young Myeloma Patients Group.

mpeurope.org/european-young…

🌍 The last session for today at the #MPEMasterclass 2024 explores the topic of cross-border access to medicine and trials with Ananda Plate and Claudia Louati

#AccessToMedicine #ClinicalTrials

Claudia Louati shares updates and clarifications around the EU Cross-Border Health Care legislation at #MPEMasterclass . We witness some progress but there are still outstanding question marks and uncertainties about cross-border #access to treatments and care.
#cbhc

Key findings: myeloma patients are less involved in the decision making than they would like. This is the case at diagnosis and at the most recent consultation.

Ellen Watters and Vincent Claus leading breakout session two, which addresses the needs of young myeloma patients including career, finances, fertility, family life and more.

#YoungPatients #myeloma #PatientSupport

Attendees are taking part in breakout session one led by MPE´s Research Assistant, Silene Ten Seldam, who will talk about shared decision-making between patients and medical teams.

#SharedDecisionMaking #MPEMasterclass

Session three of the #MPEMasterclass is all about Real World Evidence (RWE) with experts Karen Facey, Dr. Jelena Bila and Martine Elias.

#RealWorldEvidence #healthcare #myeloma #ALamyloidosis

Silene is sharing Myeloma Patients Europe research project on shared decision making in myeloma at #MPEmasterclass

'If we aren't at the table, we won't be on the menu' quote Martine Elias Myeloma Canada Patients representation is key in Real World Evidence initiatives. Myeloma Patients Europe #mpemasterclass

Martine Elias sharing her RWE wish list and leaving us with this final message: patient voice is critical and let’s use our data wisely
#MPEMasterclass

Dr. Albert Oriol started the Myeloma Patients Europe ’s #MyelomaMasterclass with a great summary of the latest updates on #myeloma and #ALamyloidosis . Very imprtant information for the myeloma community.