Calling all haematology patients and carers!

Don't miss this landmark event designed just for you. Connect, learn, and share experiences at the HPCC on May 10th in London.

Together, we can make a difference in the haematology community.

Follow the link patientcongress.com

Huge Shoutout to Cara! 🎉

Cara has been a superstar, raising over £1000 with a bake sale for MPN Voice! 🍰 Her dedication supports our mission and brings hope to many, including her brave 4-year-old daughter Winnie, who battles Essential Thrombocythemia.

#mpnvoice 💜

🌟 Turn your passion into purpose with MPN Voice! Fundraise with your talent and make a difference. Join us now! email [email protected] 💪 #FundraisingHeroes #MPNSM

New Vlogcast Alert!

Join us for an inspiring chat with Gill as she talks about fatigue challenges, the importance of routine, and how counseling helped her regain control of her MPN.

Don't miss these valuable insights!

linktr.ee/Mpnvoice

#mpnsm

Over £3000 raised for MPN Voice. I'm completely blown away by people's generosity, thank you to everyone that has sponsored me (& put up with my running chat). Just the small matter of running the damn thing now TCS London Marathon #WeRunTogether justgiving.com/page/rachel-ph…

The wait is OVER!
My MPN Voice App has landed!
If you registered an interest (UK only), keep an eye on your inbox for onboarding details!

Not registered and from the UK? Request access here -linktr.ee/Mpnvoice

The App will be open to non-UK patients shortly...
#mpnsm

In her Get to Know interview, Claire Harrison, MD, of Guy's and St Thomas', tells us how she helps build community with MPN Voice.

'This work has been incredibly valuable for me on a personal as well as professional level,' she said of the organization.

📖 buff.ly/4cEaKhg

Exciting news!
The first-ever Haematology Patient and Carers Congress - May 10th (QE II Centre, London).
Patients, carers, clinicians, and policymakers unite!
For information-linktr.ee/Mpnvoice
#mpnsm #HPCC2024 #PatientEmpowerment
See you there...

In Conversation with Nona:

Mary shares her journey with essential thrombocythemia (ET), diagnosed at 17 after a DVT post-knee surgery and 41 years later, she’s thriving!
linktr.ee/Mpnvoice
#mpnsm

The video of the MPN Voice patients’ virtual forum, held on Friday 8 March 2024, is now available to view.
linktr.ee/Mpnvoice
#mpnsm

🚨 IT'S RARE DISEASE DAY GLOBALLY! 🚨 Join us marking #RareDiseaseDay 2024! Spread awareness, share stories, and support those living with rare diseases. Together, we make a lasting impact! #ShareYourColours

Tomorrow is #RareDiseaseDay ! Join the Global Chain of Lights! 🌍

The rare disease community will unite to spread solidarity with monuments, offices, schools, and homes lighting up in the Rare Disease Day colours!

Don't miss out on Feb 29, 7 PM local time!

#LightUpForRare

Mark your calendars! ️

Join us for upcoming in-person forums in:

Perth: Sept 2nd, 10am-3pm
Cardiff: Nov 27th, 4-8pm
Glasgow: Dec 6th, 1-5pm

More details coming soon! We can't wait to see you there.

#mpnvoice #mpnsm

🎉 BIG NEWS! 🎉 MPN Voice announces 7 patient forums across the UK and Ireland! 🇬🇧🇮🇪 Meet patients, haematologists, and nurses. Learn about MPNs and share experiences. Book your spot now: linktr.ee/Mpnvoice 🔗 Space is limited, so book early! 🏃‍♀️🏃‍♂️💨 #mpnvoice #mpnsm

Join us for a virtual forum on the latest ASH updates. Esteemed speakers include Prof. Claire Harrison, Dr. Bethan Psaila, and Dr. Jonathan Lambert. Event on March 8, 2024, 4:30-6:00 PM GMT. Register at linktr.ee/Mpnvoice. Stay informed and connected! 🌐👥 #ASHUpdates

Vlogcast Alert! Dana Turner, diagnosed with PV at 29, shares her journey. From migraines to Besremi, she advocates for MPN patients. Dana’s hope? A cure for MPNs and more treatment options. #mpnsm
Watch now - linktr.ee/Mpnvoice

Great news! NICE recommends momelotinib for MF patients in England! We advocated for this and hope it reaches Wales & NI soon. Existing treatments have limitations - this is an important new option! #MPNSM
Learn more - mpnvoice.org.uk/news/nice-guid…

Millions of people around the world often suffer and die unnecessarily due to a lack of awareness, resources, and access to affordable and quality #cancer services. It’s
time to #CloseTheCareGap this #WorldCancerDay
worldcancerday.org

OUTpatients, the UK’s LGBTIQ+ cancer charity, and Macmillan Cancer Support are looking to chat to LGBTIQ+ people affected by cancer from all over the UK about their experiences.

For more information, click here linktr.ee/Mpnvoice
#mpnsm

This is an online, paid focus group.

Here’s a sneak peek of what’s coming up! MPN Voice is excited to announce in-person patient forums in Oxford, Belfast, Liverpool, Newcastle-upon-Tyne, and Leeds and also save the dates for Cambridge and Dublin. Don’t miss out linktr.ee/Mpnvoice #mpnsm