Albinism Umbrella(@albinismumbrell) 's Twitter Profileg
Albinism Umbrella

@albinismumbrell

Albinism Umbrella is a voice to Persons with albinism in Uganda and Africa as a whole. Our goal is to be the partner of choice on issues of disability advocacy

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linkhttp://www.albinismumbrella.org calendar_today27-03-2017 15:13:42

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Albinism Umbrella is facilitating access for persons with albinism and their families to acquire skills, livelihood opportunities, enhance their participation in community life as well as self fulfillment.

Albinism Umbrella is facilitating access for persons with albinism and their families to acquire skills, livelihood opportunities, enhance their participation in community life as well as self fulfillment. #ActionForAlbinism #DisabilityEmpowerment #DisabilityInclusion
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Employment is an important life activity, it contributes to personal fulfillment and self worth. Depriving persons with albinism of employment greatly affects their dreams, personal development and social integration.

Employment is an important life activity, it contributes to personal fulfillment and self worth. Depriving persons with albinism of employment greatly affects their dreams, personal development and social integration. #ActionForAlbinism #DisabilityEmpowerment #DisabilityInclusion
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Persons with albinism deserve access to skills development and lifelong learning opportunities, therefore we encourage parents of children with albinism to advocate for access to education, skills acquisition and employment opportunities for their children.

Persons with albinism deserve access to skills development and lifelong learning opportunities, therefore we encourage parents of children with albinism to advocate for access to education, skills acquisition and employment opportunities for their children. #ActionForAlbinism
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Participation in cultural activities in the African context is important for persons with disabilities especially with albinism. It helps establish a personal identity and sense of belonging as well as opportunities for persons with disabilities to contribute.

Participation in cultural activities in the African context is important for persons with disabilities especially with albinism. It helps establish a personal identity and sense of belonging as well as opportunities for persons with disabilities to contribute. #ActionForAlbinism
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Olive Namutebi in the panel session on ‘Protecting the Rights of Children with Albinism in Africa: Challenges and Responses’ at the ongoing 24th Ordinary Session of the ACRWC CSO FORUM in Maseru, Lesotho, stated that the issue of health is the

#HappeningNow #Day2 @Olivenamutebi in the panel session on ‘Protecting the Rights of Children with Albinism in Africa: Challenges and Responses’ at the ongoing 24th Ordinary Session of the @ACERWC_CSOForum in Maseru, Lesotho, stated that the issue of health is the
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Safe & caring environments are essential for all children, including those with disabilities; who need to receive love and affection to stimulate learning and development. As a community, play an important role in promoting the rights of children with disabilities.

Safe & caring environments are essential for all children, including those with disabilities; who need to receive love and affection to stimulate learning and development. As a community, play an important role in promoting the rights of children with disabilities. #Albinism
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In communities, there are barriers that impact on the quality of life of persons with albinism & their families. Issues that relate to health, education, water & sanitation etc. all have an impact on the incidence and prevalence of disability, yet its often ignored.

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Did you know?
Local communities can be empowered to remove barriers to discrimination of persons with albinism and their families and play an active role in facilitating the inclusion of persons with albinism in family and community activities.

Did you know? Local communities can be empowered to remove barriers to discrimination of persons with albinism and their families and play an active role in facilitating the inclusion of persons with albinism in family and community activities. #ActionForAlbinism #Disability
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When the community shares a common goal and actively participates in both identifying needs and being part of the solution in regard to persons with albinism, then there is progress since society gets actively involved in the process of change.

When the community shares a common goal and actively participates in both identifying needs and being part of the solution in regard to persons with albinism, then there is progress since society gets actively involved in the process of change. #ActionForAlbinism #Empowerment
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Let's carry out a basic communication assessment.

Does status, power and role influence communication?
E.g. In our African society, can a woman with albinism talk in front of men or a man?

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To support self advocacy and develop effective communication to empower persons with albinism, we address not only the individual and the environment but also their own ability to communicate.

To support self advocacy and develop effective communication to empower persons with albinism, we address not only the individual and the environment but also their own ability to communicate. #ActionForAlbinism #disabilityinclusion #DisabilityEmpowerment
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Self advocacy is an important part of empowerment, in many settings persons with albinism experience stigma and discrimination and it can be very difficult to voice out opinions, often persons with albinism will need your support to get their voices heard.

Self advocacy is an important part of empowerment, in many settings persons with albinism experience stigma and discrimination and it can be very difficult to voice out opinions, often persons with albinism will need your support to get their voices heard. #ActionForAlbinism
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Advocacy depends on how important messages are being communicated and heard. However, many people with albinism experience barriers to communication so often that their voices are not heard & they have few opportunities to influence decisions on issues, policies and services. pic.twitter.com/rPvHXTNqPw

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Being together helps minimize isolation, increases mutual support and blocks out stigma. Many persons with albinism feel they are the only ones facing certain issues but when they meet others in the similar space, they share problems and find common solutions.
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