Together for Short Lives
@Tog4ShortLives
Together for Short Lives is the UK charity for children and young people who are expected to have short lives.
ID:61167492
http://www.togetherforshortlives.org.uk 29-07-2009 10:52:06
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šNext Tuesday our own James Cooper is giving evidence in parliament to MPs on the financial challenges facing children's hospices. We'll share a link to watch on Tuesday, and in the meantime join our #ShortLivesCantWait campaign here
togetherforshortlives.org.uk/campaign/shortā¦
In her latest update from Canada Helena Dunbar visits Canuck Place Children's Hospice and learns about its model of delivery and meets the wonderful team. Find out more about her The Churchill Fellowship here: togetherforshortlives.org.uk/the-palliativeā¦
Our Energy Adviser visited AlexanderDevine on the weekend and met over 20 families. She shared information about our new energy advice service and Family Support Hub. Families can book a bespoke 1-2-1 with our Energy Adviser here: togetherforshortlives.org.uk/get-support/suā¦
Diagnosed with FOXG1, Bethany needs 24/7 care. Her family have a small care package from their local council, but it isnāt enough. We are calling on the UKās governments, the NHS and others to act now. Because #ShortLivesCantWait . Read her story here: togetherforshortlives.org.uk/family_story/bā¦
Today, Welsh Government have announced that additional funding worth Ā£770,000 is set to be received by the two children's hospices, TÅ· Hafan and Hope House & TÅ· Gobaith Children's Hospices.
We are still seeking a Corporate Partnerships Manager to join our Fundraising team, managing and delivering partnerships with companies that raise vital funds for our work and we would love to hear from you!
Closing date: 15/04/24
Find out more here: togetherforshortlives.org.uk/job/corporate-ā¦
šŗ'When a child takes their first breath, their care is fully funded by the NHS. So why isn't it when they take their last breath' said Julia's House Children's Hospices CEO Martin Edwards on BBC Points West this evening. Watch here bbc.co.uk/programmes/b00ā¦ then sign here šļø togetherforshortlives.org.uk/campaign/shortā¦
šEid Mubarak!š
Last summer, Martin House Children's Hospice hosted a joyous Eid event welcoming families to celebrate the Islamic festival using Morrisons Making Memories Together grant. With traditional music, dƩcor and food, it was a memorable day for 29 families from across Yorkshire.
Last week we brought you the news that our Helena Dunbar had been awarded a prestigious palliative care The Churchill Fellowship.
In her second blog instalment, she begins her travels and takes in some sights, before the real work begins:
togetherforshortlives.org.uk/time-for-some-ā¦
šŗDid you catch Andrew Fletcher on BBC Breakfast this morning? He discussed the issues facing childrenās palliative care and the urgent action needed to fix them.
Your voice has power. Sign our open letter to the Prime Minister to call for action today: bit.ly/4aHc6pw
It's unacceptable that childrenās hospices rely on donations to provide complex care to seriously ill children. Sign our letter to the Prime Minister to ask Government to act now, because incredible childrenās hospices like Julia's House Children's Hospices need more funding: bit.ly/3PS96yB