Together for Short Lives(@Tog4ShortLives) 's Twitter Profileg
Together for Short Lives

@Tog4ShortLives

Together for Short Lives is the UK charity for children and young people who are expected to have short lives.

ID:61167492

linkhttp://www.togetherforshortlives.org.uk calendar_today29-07-2009 10:52:06

30,4K Tweets

25,6K Followers

2,4K Following

Together for Short Lives(@Tog4ShortLives) 's Twitter Profile Photo

šŸ‘€Next Tuesday our own James Cooper is giving evidence in parliament to MPs on the financial challenges facing children's hospices. We'll share a link to watch on Tuesday, and in the meantime join our campaign here
togetherforshortlives.org.uk/campaign/shortā€¦

account_circle
Together for Short Lives(@Tog4ShortLives) 's Twitter Profile Photo

We're thrilled to announce our new partnership with Proxima. They'll join us in supporting families caring for a child with a life-limiting condition. Together, we'll ensure the very best care is accessible for families when it's needed most. bit.ly/49AryCY

We're thrilled to announce our new partnership with @Proxima_Group. They'll join us in supporting families caring for a child with a life-limiting condition. Together, we'll ensure the very best care is accessible for families when it's needed most. bit.ly/49AryCY
account_circle
Together for Short Lives(@Tog4ShortLives) 's Twitter Profile Photo

In her latest update from Canada Helena Dunbar visits Canuck Place Children's Hospice and learns about its model of delivery and meets the wonderful team. Find out more about her The Churchill Fellowship here: togetherforshortlives.org.uk/the-palliativeā€¦

account_circle
Together for Short Lives(@Tog4ShortLives) 's Twitter Profile Photo

Our Energy Adviser visited AlexanderDevine on the weekend and met over 20 families. She shared information about our new energy advice service and Family Support Hub. Families can book a bespoke 1-2-1 with our Energy Adviser here: togetherforshortlives.org.uk/get-support/suā€¦

Our Energy Adviser visited @alexanderdevine on the weekend and met over 20 families. She shared information about our new energy advice service and Family Support Hub. Families can book a bespoke 1-2-1 with our Energy Adviser here: togetherforshortlives.org.uk/get-support/suā€¦
account_circle
Together for Short Lives(@Tog4ShortLives) 's Twitter Profile Photo

Diagnosed with FOXG1, Bethany needs 24/7 care. Her family have a small care package from their local council, but it isnā€™t enough. We are calling on the UKā€™s governments, the NHS and others to act now. Because . Read her story here: togetherforshortlives.org.uk/family_story/bā€¦

Diagnosed with FOXG1, Bethany needs 24/7 care. Her family have a small care package from their local council, but it isnā€™t enough. We are calling on the UKā€™s governments, the NHS and others to act now. Because #ShortLivesCantWait. Read her story here: togetherforshortlives.org.uk/family_story/bā€¦
account_circle
Together for Short Lives(@Tog4ShortLives) 's Twitter Profile Photo

Whilst this one-off payment is welcome, long-term sustainable funding is still desperately needed to ensure the hospices can plan longer term and reach many more seriously ill children and families in need of support.

account_circle
Together for Short Lives(@Tog4ShortLives) 's Twitter Profile Photo

Exciting news! šŸš€ We are partnering with @Peninsula_UK to support childrenā€™s hospices across the UK. Peninsula have committed to raising Ā£1 million over three years for the vital care that hospices provide for families in their communities. Read more here: rb.gy/a95l5q

Exciting news! šŸš€ We are partnering with @Peninsula_UK to support childrenā€™s hospices across the UK. Peninsula have committed to raising Ā£1 million over three years for the vital care that hospices provide for families in their communities. Read more here: rb.gy/a95l5q
account_circle
Together for Short Lives(@Tog4ShortLives) 's Twitter Profile Photo

We are still seeking a Corporate Partnerships Manager to join our Fundraising team, managing and delivering partnerships with companies that raise vital funds for our work and we would love to hear from you!

Closing date: 15/04/24

Find out more here: togetherforshortlives.org.uk/job/corporate-ā€¦

account_circle
Together for Short Lives(@Tog4ShortLives) 's Twitter Profile Photo

We know families caring for a seriously ill child often appreciate support from others who understand their situation. Our free guide provides information and contact details for some helpful charities and support groups. Download it here:
togetherforshortlives.org.uk/get-support/suā€¦

account_circle
Together for Short Lives(@Tog4ShortLives) 's Twitter Profile Photo

šŸ“ŗ'When a child takes their first breath, their care is fully funded by the NHS. So why isn't it when they take their last breath' said Julia's House Children's Hospices CEO Martin Edwards on BBC Points West this evening. Watch here bbc.co.uk/programmes/b00ā€¦ then sign here šŸ–Šļø togetherforshortlives.org.uk/campaign/shortā€¦

account_circle
Together for Short Lives(@Tog4ShortLives) 's Twitter Profile Photo

šŸŒŸEid Mubarak!šŸŒŸ

Last summer, Martin House Children's Hospice hosted a joyous Eid event welcoming families to celebrate the Islamic festival using Morrisons Making Memories Together grant. With traditional music, dƩcor and food, it was a memorable day for 29 families from across Yorkshire.

šŸŒŸEid Mubarak!šŸŒŸ Last summer, @MartinHouseCH hosted a joyous Eid event welcoming families to celebrate the Islamic festival using @Morrisons Making Memories Together grant. With traditional music, dĆ©cor and food, it was a memorable day for 29 families from across Yorkshire.
account_circle
Together for Short Lives(@Tog4ShortLives) 's Twitter Profile Photo

Happy šŸ’œ

Celebrating with the story of Jessica and Liam, avid fans of Kilmarnock Football Club, who were overjoyed to receive season tickets through the Making Memories Together grant, thanks to Morrisons fundraising.

Happy #NationalSiblingsDay šŸ’œ Celebrating with the story of Jessica and Liam, avid fans of Kilmarnock Football Club, who were overjoyed to receive season tickets through the Making Memories Together grant, thanks to @Morrisons fundraising.
account_circle
Together for Short Lives(@Tog4ShortLives) 's Twitter Profile Photo

Last week we brought you the news that our Helena Dunbar had been awarded a prestigious palliative care The Churchill Fellowship.
In her second blog instalment, she begins her travels and takes in some sights, before the real work begins:
togetherforshortlives.org.uk/time-for-some-ā€¦

Last week we brought you the news that our @HelenaDunbar had been awarded a prestigious palliative care @ChurchillFship. In her second blog instalment, she begins her travels and takes in some sights, before the real work begins: togetherforshortlives.org.uk/time-for-some-ā€¦
account_circle
Together for Short Lives(@Tog4ShortLives) 's Twitter Profile Photo

Employees are entitled to one weekā€™s unpaid leave per year if providing or arranging care for someone with a long-term care need. Find out more about what this might mean for you Carers UK: carersuk.org/help-and-advicā€¦

account_circle
Together for Short Lives(@Tog4ShortLives) 's Twitter Profile Photo

šŸ“ŗDid you catch Andrew Fletcher on BBC Breakfast this morning? He discussed the issues facing childrenā€™s palliative care and the urgent action needed to fix them.

Your voice has power. Sign our open letter to the Prime Minister to call for action today: bit.ly/4aHc6pw

šŸ“ŗDid you catch @itsandyfletch on @BBCBreakfast this morning? He discussed the issues facing childrenā€™s palliative care and the urgent action needed to fix them. Your voice has power. Sign our open letter to the Prime Minister to call for action today: bit.ly/4aHc6pw
account_circle
Together for Short Lives(@Tog4ShortLives) 's Twitter Profile Photo

It's unacceptable that childrenā€™s hospices rely on donations to provide complex care to seriously ill children. Sign our letter to the Prime Minister to ask Government to act now, because incredible childrenā€™s hospices like Julia's House Children's Hospices need more funding: bit.ly/3PS96yB

account_circle