NotRecovered(@Not_Recovered) 's Twitter Profileg
NotRecovered

@Not_Recovered

We share the stories of people who have #NotRecovered #LongCovid | #MECFS | #PostVac We fight internationally for research, treatment and recognition.

ID:1578721257708830721

linkhttp://notrecovered.org calendar_today08-10-2022 12:18:01

976 Tweets

6,0K Followers

198 Following

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Sawyer(@SawyerBlatz) 's Twitter Profile Photo

Just ONE DAY LEFT to call senators & demand their attendance at the hearing!

Let's get those final 4 😤

longcovidmoonshot.com

Just ONE DAY LEFT to call senators & demand their attendance at the #LongCOVID hearing! Let's get those final 4 😤 longcovidmoonshot.com
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Sawyer(@SawyerBlatz) 's Twitter Profile Photo

We did WORK today, folks!

🤯 10 of the 15 senators we called have confirmed they will be attending the hearing on January 18th.

🫡 Tomorrow is the LAST DAY to make calls. Let's see if we can get 15 confirmations.

More info 👉 longcovidmoonshot.com

We did WORK today, folks! 🤯 10 of the 15 senators we called have confirmed they will be attending the #LongCovid hearing on January 18th. 🫡 Tomorrow is the LAST DAY to make calls. Let's see if we can get 15 confirmations. More info 👉 longcovidmoonshot.com
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Sawyer(@SawyerBlatz) 's Twitter Profile Photo

🔥 We have several senators whose staff have confirmed their attendance, let's focus our energy on those who haven't!

📞 Please take a moment to call some of these senators & make sure they attend the hearing on Jan 18th.

More info 👉 longcovidmoonshot.com

🔥 We have several senators whose staff have confirmed their attendance, let's focus our energy on those who haven't! 📞 Please take a moment to call some of these senators & make sure they attend the #LongCovid hearing on Jan 18th. More info 👉 longcovidmoonshot.com
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Senator Tina Smith(@SenTinaSmith) 's Twitter Profile Photo

Long COVID doesn’t get nearly enough attention — it’s upended lives and the health of millions.

These advocates have been pushing hard for more action and I’m looking forward to a productive hearing.

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charlos(@loscharlos) 's Twitter Profile Photo

Long Covid Moonshot This is an all hands on deck situation — we need **every single person** who is able to make a call, making calls !!

If every time there’s an opportunity for Congress to hear from us — they don’t hear from us. How are they supposed to believe so many people are really impacted?

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Long Covid Moonshot(@LCMoonshot) 's Twitter Profile Photo

The HELP Committee hearing on January 18 is open to the public and we encourage all (who are able) to attend and connect on this thread! The hearing will be in the Dirksen Senate Office Building room 430 (SD-430). Doors open at 9:45am ET. Arrive early to get through security!

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Long Covid Moonshot(@LCMoonshot) 's Twitter Profile Photo

Join our live Twitter X Space @LCmoonshot on Tuesday, January 16, at 3pm Eastern/12pm Pacific, to call on members of the H.E.L.P. committee to attend the hearing and discuss topics they might cover.
Then, stay tuned for a follow-up Space to discuss next steps!

Join our live Twitter X Space @LCmoonshot on Tuesday, January 16, at 3pm Eastern/12pm Pacific, to call on members of the H.E.L.P. committee to attend the hearing and discuss topics they might cover. Then, stay tuned for a follow-up Space to discuss next steps!
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Dakota(@Dakota_150) 's Twitter Profile Photo

Was informed by my Senator’s staff today (Senator Tina Smith) that Congress has called for a HELP Committee hearing next week (Full Committee) to address Long COVID.

They also noted to me that patient advocacy has been vital in raising the issue to them. 🗣️

Was informed by my Senator’s staff today (@SenTinaSmith) that Congress has called for a HELP Committee hearing next week (Full Committee) to address Long COVID. They also noted to me that patient advocacy has been vital in raising the issue to them. 🗣️
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NotRecovered(@Not_Recovered) 's Twitter Profile Photo

The year 2023 has come to an end and there is still no approved therapy for post acute infection syndrome such as & .

Therefore, we will continue to fight for research and therapies for all of us in 2024.

Stella Kyriakides Sandra Gallina Dr. Robert M. Califf Dr. Monica M. Bertagnolli

The year 2023 has come to an end and there is still no approved therapy for post acute infection syndrome such as #LongCovid & #MECFS. Therefore, we will continue to fight for research and therapies for all of us in 2024. @SKyriakidesEU @SandraGallina @DrCaliff_FDA @NIHDirector
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NotRecovered(@Not_Recovered) 's Twitter Profile Photo

Millions of people suffer from , for which there is not a single approved treatment.

It's time for President Biden to declare a national emergency!
It's time to act!

Sign Now ✍️

actionnetwork.org/letters/help-e…

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Olenka Sayko(@coco_chatel) 's Twitter Profile Photo

Didn’t get a chance to send an card last week? That’s okay! The important thing is to send one so your elected officials can hear your story when they’re back in the office in the new year.

Guides and templates at longcovidmoonshot.com

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IH(@inadarkroom247) 's Twitter Profile Photo

I was in peak health before COVID. I loved hiking, I lifted weights, ate healthily and rarely got ill. I had 1 mild infection at 21 and now I'm bedbound with and I'm only 24 and I'm dying

I was in peak health before COVID. I loved hiking, I lifted weights, ate healthily and rarely got ill. I had 1 mild infection at 21 and now I'm bedbound with #severeME and #POTS I'm only 24 and I'm dying #MEAwarenessDay
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Natalie(@Natalie6548) 's Twitter Profile Photo

I spent my entire wedding day exploring Yosemite in a wedding dress and hiking boots. Thanks to a “mild” covid infection in 2022, I can now barely walk and spend every day in a darkened bedroom.

If you have your health, please listen…

I spent my entire wedding day exploring Yosemite in a wedding dress and hiking boots. Thanks to a “mild” covid infection in 2022, I can now barely walk and spend every day in a darkened bedroom. If you have your health, please listen…
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NotRecovered(@Not_Recovered) 's Twitter Profile Photo

Awareness campaigns are needed to properly educate doctors and the public about post viral infection syndromes like and !

Why do patients have to organize and pay for this?

Awareness campaigns are needed to properly educate doctors and the public about post viral infection syndromes like #MECFS and #LongCovid! Why do patients have to organize and pay for this?
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