Before starting on #biologics I took #paracetamol and #celecoxib but these don't stop the progression of #Ankylosing #spondylitis and had little impact!
Thankfully I take them weekly which means less pain
#AxialSpALife
NASS
Versus Arthritis

We covered a lot of ground in our #YourSpAce online meetup on Thursday. We chatted about small changes that can make a big difference to life with #axialSpA . What would you add to our list? Share your tips in the comments

#11 #AnkylosingSpondylitis affects my knees, fingers, neck and ribs (front and back, oddly only on the left side). Fatigue & brain fog is overwhelming and embarrassing. My capacity to do so many ‘normal things’ is reduced. I’ve adapted over the years but gets in the way daily.

Zoë Clark NASS My latest has been tenosynovitis for 6 months - moving from one wrist to the other and different locations. This swelling was from ECU tenosynovitis. Initially, I was told just overuse!!

Day 11 of #NASS #axialSpA awareness challenge - Not just back pain
I also get #AS pain in my shoulders, neck, elbows, and wrists. Very frustrating 😑
#uveitis flare-ups happen often.

#ankylosingspondylitis
#axialSpA life NASS #iritis

Have you seen the new resources we produced in partnership with people living with #axialSpA and healthcare professionals? Order free postcards to signpost your patients to #YourSpAce : nass.co.uk/homepage/healt…

Enter the #NASS SuperSummerPrizeDraw for the chance to win £500!
Buy some raffle tickets and stay tuned for the 29/09 to find out if you've won: fundraising.nass.co.uk/raffle/nass-su… (the more tickets you have, the more likely you are to be drawn! 🤫)
#NASS #AxialSpondyloarthritis #AxialSpA

Day 11 of #AxialSpALife , NASS social media challenge: not just back pain - share how #axialSpA affects other areas of your body

Day 10 of #AxialSpALife : What does a flare up look like for you?
My flares are quite unpredictable these days. Both in terms of what flares up and what triggers it. I’ve shared about the rib pain I experience, as it’s the most debilitating symptom I get: instagram.com/p/C6zMsBNIDV5/…

Day 10 of #NASS #axialSpA awareness challenge - What does a flare-up look like?
I made an enamelled copper piece 'axialSpA Days' a few years ago... Red is pain, discomfort, and fatigue. White is a 'normal' day.
#ankylosingspondylitis
#axialSpA life NASS

Day 10 of raising awareness of Axial SpA. For me, a flare is a worsening of my AS symptoms. The inflammation is usually in my neck but can also be in my knee which also causes swelling and stiffness. Movement is more painful during a flare.

#AxialSpALife

#AnkylosingSpondylitis

10 #WYASO my flares=a cascade of pain ranging from acute, crunchy sharp pains to broad dull ache.Constantly rearranging my stiff, sore body and exhausted by it all. Guilt for not being able to do the fun stuff with my kids can be emotionally crippling
nass-walk-your-as-off.raiselysite.com/orang-eya-glad…

Day 10
NASS social media challenge

An #AnkylosingSpondylitis flare up for me is a spectrum

Lower end
My fatigue goes up, my brain capability goes down

Higher end
Walking becomes near impossible, back spasms and twinges of stabbing pain, shattered hips

#AxialSpALife

Meet Bethany.

She talks through her experience of developing #symptoms in her teens, not finding any answers and then being #diagnosed at such an early point in life, but overcoming that to live well with #axialSpA .

Read her story and more at bit.ly/3wZiXfg.

A flare can happen at any time for any reason, mine tend to come from stress, or a virus! There is not alot you can do but rest, for me cry on my husband!
For support call
NASS 020 8741 1515
Versus Arthrits
0800 5200 520
#AxialSpALife
NASS
Versus Arthritis

Belated day 9 of the @nass_exercise #AxialSpALife social media challenge - tell us about your support system. Late to the party because of yesterday’s brain fog and fatigue 🤦🏻‍♀️ But here’s a snapshot of my support system 💖 More info in the caption: instagram.com/reel/C6yeh4QIX…

Day 9 of raising awareness of Axial SpA. I have a number of support systems:family and friends, occupational health, our wonderful NHS especially my GP practice and Rheumatology department, online support groups and of course NASS.

#AxialSpALife

#AnkylosingSpondylitis

#Nass

#FeelGoodFriday as our #WYASO walkers complete the 1st week of the challenge! We are incredibly grateful and proud of them for raising over £1,600 so far. Make sure to keep cheering them on, and support them by donating to their fundraising pages: nass-walk-your-as-off.raiselysite.com/leaderboards
#NASS

Day 9 of #NASS #axialSpA awareness challenge
Support system... not easy to answer under current circumstances...
Manali 🐕 is my constant companion and gets me through difficult days. She also gives me reason to walk more
#ankylosingspondylitis
#axialSpA life NASS 1/

My local friends are amazing and I really value their encouragement & help, especially on days when the pain makes even simple tasks feel like a massive challenge.

My amazing rheumatology consultant and NASS are also a great support to me.
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