📢CALLING all patients with Lupus 🦋

🗣️Your voice matters!

👉 Participate in our LUPPOS survey to help us better understand your attitudes towards steroids used in SLE treatment

⬇️Links available in comments

Lupus Europe Federación Española Lupus | #FELUPUS Asociación de #Lupus de Madrid Laurent ARNAUD Donald Thomas, MD

✅ Now a related question for NON-SEVERE #Lupus manifestations. Let's say #pericarditis . Do you typically do an mPred infusion in that case? If so how much?
NB: X offers only 4 choices so please don't vote if you're not a doctor 🙏 I will show the results tomorrow anyway.

✅ Management of REFRACTORY #LUPUS ⬇️
#Lupusawareness month

En el #DiaMundialDelLupus , GLADEL y Lupus Europe invitan a participar en una ENCUESTA que busca comprender cómo es la vida de los pacientes con lupus en Latinoamérica en 2024, disponible hasta
mayo/2024.
👉 lnkd.in/d3ZU6dGf
¡Gracias por tu colaboración!

⚠️ #SLE can potentially affect a wide range of daily activities, from educational pursuits & career development to maintaining family relationships and social activities.

✅ Complete this survey & help us understand and show the real impact of lupus

 s.surveylegend.com/-Nr54WsZrcnC-4…

✅ Happy to report that we are moving forward to #SLAKE STEP 4 👍 The international panel of experts, PANs from Lupus Europe and AgrupacionLupusChile + the members of the ERN ReCONNET 🇪🇺 #Lupus group are triaging the preliminary bank of 500 questions, to retain only the essential ones 👌

#DiaMundialDelLupus GLADEL y Lupus Europe invita a los pacientes con #LES a la encuesta #Viviendo con #lupus para como les afecta el #lupus s.surveylegend.com/-NwQ5lw5t84EKc…
Panlar PANLAR joven Asopan ALUA Asociación Lupus Perú AgrupacionLupusChile Grupo Lupus Colombia @lupus_mexico

♦️ Few days left to fill the Living With Lupus in 2024 survey!

✍🏻 Izpolnite anketo.

🔊 Delite z vašo skupnostjo.

🙏 Help us achieve more answers to ensure the Slovak population is represented in the results

s.surveylegend.com/-Nt-wdNdIqT4v3…

#LupusAwarenessMonth

On World Lupus Day, @lupusreference discusses the unmet need of fatigue in #Lupus and how understanding it can lead to better management strategies.
#WorldLupusDay
#DiaMundialDelLupus
youtu.be/k1QEHoYS1ZY?si…

❤️Thank you for your support on this day & for ⬆️ awareness of the potential impact lupus can have.
 
However, there's something 🗝️that we also need to show.

🦋Lupus is an invisible illness with many faces. Let’s close #WorldLupusDay with our hopes,laughter & enthusiasm for life

It is estimated that about 50% of #SLE patients will suffer from #lupus nephritis, one of SLE's 🔝dangerous & frequent complications.

Routine checkups➕available treatments make it possible for 60–70% of patients to achieve complete or partial remission

#WorldLupusDay
#Lupus100