Jeffrey Modell Foundation (JMF)(@Info4PI) 's Twitter Profileg
Jeffrey Modell Foundation (JMF)

@Info4PI

JMF is a global nonprofit dedicated to #PrimaryImmunodeficiency Advocacy, Research, Education, Newborn Screening & Genetic Sequencing to #CurePI worldwide 🌎

ID:1289069959

linkhttp://www.info4pi.org calendar_today22-03-2013 16:08:12

6,8K Tweets

3,5K Followers

3,4K Following

Jeffrey Modell Foundation (JMF)(@Info4PI) 's Twitter Profile Photo

⚡Newborn Screening SAVES LIVES!⚡ In honor of , physicians Antonio Condino of São Paulo, Brazil and Pere Soler-Palacín of Barcelona, Spain speak on the importance of for all around the world. Learn more here: bit.ly/41IDYpV

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We’re celebrating with gratitude for the incredible doctors, brave patients & passionate advocates worldwide who stand tall in the face of Primary Immunodeficiency. Let's continue to shine a light on PI ❤️⁠ Check out the FULL video on our Instagram!

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Happy ! We want to thank our generous sponsors for their continued partnership in our shared mission to work towards curing PI worldwide! Their support allows JMF to expand our awareness efforts and support programs for our global PI community❤️

Happy #WorldPIWeek! We want to thank our generous sponsors for their continued partnership in our shared mission to work towards curing PI worldwide! Their support allows JMF to expand our awareness efforts and support programs for our global PI community❤️
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Today kicks off , and this year, we are working towards our mission in loving memory of Vicki Modell, global patient advocate and leader of World Primary Immunodeficiency Week. Join us this week in commemorating Vicki and celebrating . 💖

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Today’s PI: Hypogammaglobulinemia, which is a Primary Immunodeficiency characterized by low levels of antibodies called immunoglobulins in your immune system. Stay tuned to learn about more types of PIs 💛⁠

Today’s PI: Hypogammaglobulinemia, which is a Primary Immunodeficiency characterized by low levels of antibodies called immunoglobulins in your immune system. Stay tuned to learn about more types of PIs 💛⁠ #PIIdentified
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📣 Calling all those interested in learning more about PI/IEI diseases! PEPI (Project Echo for Primary Immune Disorders) is focused on improving education about and recognition of PI! Register now: bit.ly/441LflU

📣 Calling all those interested in learning more about PI/IEI diseases! PEPI (Project Echo for Primary Immune Disorders) is focused on improving education about and recognition of PI! Register now: bit.ly/441LflU
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In 2024, our WIN program has already received and approved 6 applications impacting 17 different countries. Within these 6 approved WIN grants, we are impacting over 8,800 patients! To learn more or submit an application, visit info4pi.org/village/win/

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: April 22-29 is ! ❤️ Stay tuned in to our social channels as we’ll be spreading awareness, sharing stories of resilience, and advocating for better care and support for individuals living with PI!

#PIFact: April 22-29 is #WorldPIWeek! ❤️ Stay tuned in to our social channels as we’ll be spreading awareness, sharing stories of resilience, and advocating for better care and support for individuals living with PI! #WPIW
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🌍❤️ Happy ! We know access to care is necessary, which is why we established the Jeffrey Modell Centers Network (JMCN), to meet the rising need for referrals and specialized centers for patients identified with PI worldwide!

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Breaking News 🚨 Victoria has joined the list of territories in Australia that will be participating in for ! This news brings us closer to our goal of SCID screening worldwide! Find out if your country is on the list: bit.ly/41IDYpV

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📣 Calling all Immunologists and Primary Immunodeficiency patients 📣 We have a special video project planned for WPIW, and would love your participation from around the world! Let us know if you’d like more info and we’ll send you a DM!

📣 Calling all Immunologists and Primary Immunodeficiency patients 📣 We have a special video project planned for WPIW, and would love your participation from around the world! Let us know if you’d like more info and we’ll send you a DM!
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Meet Audrey, a Hypogammaglobulinemia warrior! 💪 She gets treated with SCIG infusions and is now thriving and rarely gets sick. Together, her and mom raise awareness on social media in the hopes to help others feel less alone. Read Audrey’s full interview: bit.ly/48QvKxT

Meet Audrey, a Hypogammaglobulinemia warrior! 💪 She gets treated with SCIG infusions and is now thriving and rarely gets sick. Together, her and mom raise awareness on social media in the hopes to help others feel less alone. Read Audrey’s full interview: bit.ly/48QvKxT
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For a limited time only, shop our World PI Week ! Shop for good to support our global programs at bonfire.com/store/info4pi/. Order by April 4th to get your WPWIW merch in time ❤️🌎

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Happy ! 👩‍⚕️👨‍⚕️ Today, we honor and celebrate the incredible dedication, compassion, and expertise of doctors worldwide. 🌍 At JMF, we're privileged to collaborate with an extraordinary network of doctors who tirelessly champion the fight against PI. 🙌 Thank you!

Happy #NationalDoctorsDay! 👩‍⚕️👨‍⚕️ Today, we honor and celebrate the incredible dedication, compassion, and expertise of doctors worldwide. 🌍 At JMF, we're privileged to collaborate with an extraordinary network of doctors who tirelessly champion the fight against PI. 🙌 Thank you!
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The Jeffrey Modell Foundation is saddened to hear that Senator Joseph Lieberman (CT) has passed away. He was a valued friend and colleague, and we will miss him and his dedication to the PI community.

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What is SCIG? Subcutaneous Immunoglobulin (SCIG) therapy is a form of treatment for certain Primary Immunodeficiencies that is administered by patients or caregivers at home, and ranges from 1-3 times per week to once every two weeks. Have you or someone you know received SCIG?

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Every year, we are proud to organize the KIDS DAY program for members of our JMCN. KIDS DAY offers patients, their families, doctors and nurses an all-expense paid day of community, connection, and most of all, fun! Ask your immunologist or nurse if they participate in KIDS DAY!

Every year, we are proud to organize the KIDS DAY program for members of our JMCN. KIDS DAY offers patients, their families, doctors and nurses an all-expense paid day of community, connection, and most of all, fun! Ask your immunologist or nurse if they participate in KIDS DAY!
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So far this year, our WinMD program has supported 6 young physicians to attend major medical conferences to continue to enhance their Immunology training. We expect to receive many more applications this year covering most continents! 🌎✈️ Visit: bit.ly/49LPnsU

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