"Australia's 1st-ever National Recommendations for Rare Disease Health Care have been launched today to coincide with #RareDiseaseDay (29 Feb). More: bit.ly/natrecommendat… #AusRecommendations #Australia" RArEST ProjectECHO #RareDiseaseDay2024 #RareDiseaseDay #RDD2024 #RDD

On #RareDiseaseDay2024 delighted to have just published the third England Rare Diseases Action Plan tinyurl.com/495u9hk5 with thanks to our delivery partners and many from the fantastic rare diseases community who helped to shape it

The third England Action plan has launched today! At today's Rare Disease Day reception at Westminster the Rt Hon Andrew Stephenson MP, Minister with responsibility for rare diseases will launch the new England Rare Diseases Action Plan 2024. 👀 ow.ly/caFb50QJ9LJ

📢Want to attend our next round of UCL Qualitative Health Research Network training courses - There’s still time to register! ⭐️Intro to ethnography in healthcare - 20 March ⭐️Applied conversation analysis - 27 March ⭐️Writing and publishing qualitative research - 9 April Register: ucl.ac.uk/qualitative-he…

So proud to be part of such a wonderful team ☺️

Meet the first of our fantastic #CareCoordination webinar speakers on Thursday 23rd May! 💫 Senior research fellow Dr. Holly Walton UCL and Research Director, Dr. Amy Hunter Genetic Alliance UK, who will share findings from the Coordinated Care of Rare Diseases (CONCORD study).

🆕 Buddying support systems in prisons: how do they work, and what could be improved? Our National Institute for Health and Care Research #RSET team have been researching these #socialcare initiatives for adult prisoners. Watch this video to find out more. ▶️ 👇 youtube.com/watch?v=9szgil…

We are #recruiting a new Media and Communications Manager - the role includes running our press office and social media strategy. Find out more and apply here 👇 #thinktankjobs nuffieldtrust.org.uk/job/media-comm…

Join our advisory group for a research study on care co-ordination The group will include people with #RareConditions and parents/carers. The condition can be #undiagnosed - but suspected to #genetic. Learn more and apply before the 10 July 2024 – ow.ly/Aq4P50SkAS8

"They also have an opportunity for a radical partnership to provide an ordinary hope that can deliver a healthier and happier nation." Prof. Naomi Fulop UCL IEHC reflects on the challenges faced by the new Secretary of State for Health and Social Care. ucl.ac.uk/policy-lab/new…

At #HSRUK24 & Interested in how peer support is used in prisons in England and Wales to support social care delivery? Come along to the social care session (2:30 today) where I’ll share findings from the National Institute for Health and Care Research #RSET rapid evaluation! Read more: nuffieldtrust.org.uk/rset-rapid-eva…

📢 EXCITING ANNOUNCEMENT 📢 🤩 We are seeking new UCL Qualitative Health Research Network (QHRN) committee members. ❓Are you passionate about qualitative health research/methods? Are you based at UCL? If so, come and join us! 1/2

Excited to be attending the 999 EMS conference in Cambridge today to present our findings on patient and carer experience of stroke prehospital video triage! 999EMSResearchForum #999EMSRF24 Angus Ramsay

Time in the case of suspected stroke is so important! Holly Walton conveys their work on optimising prehospital diagnosis possibilities using video triage. They interviewed patients and carers who reported many benefits 👌 #999EMSRF24

Interested in prison research and peer support services? Check out our latest National Institute for Health and Care Research #RSET publication - a review of peer support services for health, social care and educational needs in adult prisons sciencedirect.com/science/articl…

This scoping review investigates #peer #support for #health, #socialcare, and #educational needs in adult #prisons sciencedirect.com/science/articl… Holly Walton