May newsletter
mailchi.mp/nihr/may-2024-…
Building #SocialCare & #dementia research capacity, a tool for people with #LongCovid , improving end-of-life care, midwife continuity of care & positive pregnancy experiences, the healing power of creative arts, opportunities, events & more

Did you know there are lots of handy toolkits and decision tools on our website to help you plan and deliver your research?

Our toolkits include:
🔹Is it research?
🔹Student research
🔹Do I need NHS REC approval?
🔹Proportionate review

Find out more ➡️ hra.nhs.uk/planning-and-i…

We're looking forward to speaking to staff from Integrated Care Boards across the country today about the role of the Confidentiality Advisory Group.

Dr Paul Mills will be talking about the use of confidential data and how CAG fits into the information governance landscape.

The deadline for applications to join our Confidentiality Advisory Group has been extended to until 9am on Monday 13 May.

If you are looking for a volunteering role and you are interested in the use of patient data we would love to hear from you.

Find out more 👇

We are delighted to announce that Catherine Blewett and Jane Morrin O'Rourke of The Health Research Authority will present the session “Right People, Right Place, Right Approach – Diversification and Decentralisation of Research” at #RDF24 .

View the full programme here: rdfconference.org/rdf24-programm…

Fantastic to see a world first clinical trial of personalised cancer immunotherapy is now under way in the UK.

This trial was reviewed and given ethical approval by our Oxford A Research Ethics Committee (REC), alongside approval through our Pharmacy Assurance process.

An international trial of the world’s first personalised mRNA cancer immunotherapy for melanoma has begun at UCLH

Melanoma is the fifth most common type of cancer in the UK

The research is underpinned by support from NIHR infrastructure

nihr.ac.uk/news/trial-beg…

📣The April edition of HRA Latest is out now!

Read our latest updates for those working in or involved in research and sign up to receive this monthly newsletter ⬇️

hra.nhs.uk/about-us/hra-l…

Are you being offered payment for helping to develop research?
Our new guidance developed with NIHR Research and @HRA_latest helps you understand your rights and responsibilities around employment and tax.
Find out more: healthandcareresearchwales.org/sites/default/…

Our Public Involvement Manager Barbara Molony-Oates 💙 She/Her spoke at an NIHR for Industry webinar on equality, diversity, and inclusion (EDI) in research.

Read this article on the event to find out how EDI can help ensure everyone is able to take part in research.⬇️
pharmaphorum.com/patients/case-…

We're looking for people to join our Confidentiality Advisory Group (CAG)!

CAG plays a vital role, advising on applications for the use of patient data without consent.

Find out about Sandra's experience of being a member and how to apply to join CAG:
hra.nhs.uk/about-us/commi…

We're delighted to welcome the International PPI Network to our #SharedCommitment to #PublicInvolvement .

They're the 23rd organisation to join the pledge, which aims to improve the quality of public involvement across the health and care research sector.

intppinetwork.wixsite.com/ippin/about/sh…

Delighted to have attended the VolREthics meeting in Paris to dicuss their new global clinical trials ethics charter.

It was great to see Dr Simon Kolstoe (Chair of Cambridgeshire and Hertfordshire REC) as part of a panel discussing how we can share lessons learned in the UK.

Our Confidentiality Advisory Group (CAG) reviews applications for the use of patient information and plays a crucial role in upholding trust in research.

We're recruiting new members!

CAG member Dan shares 4 reasons why you should consider joining ⬇️

hra.nhs.uk/about-us/news-…

We are delighted to see the importance of transparency in health and social care reinforced in ICO - Information Commissioner's Office new guidance.

We want to continue this important conversation to better understand the impact for research.

Read our response in full ➡️ hra.nhs.uk/about-us/news-…

🆕 We’ve launched new public involvement pay guidance with Health and Care Research Wales and NIHR Involvement.

The new guidance aims to help members of the public understand and know their rights and responsibilities.

Find out more ➡️ hra.nhs.uk/about-us/news-…

#PublicInvolvement #Involvement