FionaPWME (fiona.me@bsky.social)(@FionaPWME) 's Twitter Profileg
FionaPWME ([email protected])

@FionaPWME

Was a journo/writer/editor. #MECFS has crushed my life for 13+ years. (Profile pic: excerpt of cartoon by @KorneliaPaulson.)

ID:762730590680461312

calendar_today08-08-2016 19:21:58

25,0K Tweets

1,7K Followers

2,8K Following

@TheChronicCollaboration(@TheChronicColab) 's Twitter Profile Photo

PROTEST

Carla is extremely ill in West Middlesex Hospital. Doctors are ignoring NICE guidance on severe ME & ignoring her severe POTS

You know what to do

THURS 18 APRIL
11am-1pm BST
EVERYONE ONLINE
USE THE HASHTAGS

We'll be at the hospital too 1/

PROTEST #SaveCarlasLife #ExposeMENow Carla is extremely ill in West Middlesex Hospital. Doctors are ignoring NICE guidance on severe ME & ignoring her severe POTS You know what to do THURS 18 APRIL 11am-1pm BST EVERYONE ONLINE USE THE HASHTAGS We'll be at the hospital too 1/
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Janie A - lutruwita born & educated(@dinksella) 's Twitter Profile Photo

How is it that one 15 year old committing a violent act has invoked the terrorism paradigm so police have more powers, but more than one woman a week dying doesn’t invoke extra powers to deal with perpetrators of domestic violence?

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Sue J(@SMpwrgr) 's Twitter Profile Photo

Dear Mark Butler MP

An update from a genuine Health Minister:

“Long Cvd is not going away. We have many cases

AND WITH EACH WAVE OF INFECTIONS, NEW CASES OF LC ARE ADDED”

Just how many taxpayers do you want to chronically disable on yr watch? 🤔

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CoronaHeadsUp(@CoronaHeadsUp) 's Twitter Profile Photo

New Zealand: Just 53.6% of school students met the criteria for regular attendance

Sickness was still the main driver of non-attendance.

RNZ News
rnz.co.nz/news/national/…

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Dr. Daniel Loy(@loy_daniel_de) 's Twitter Profile Photo

People should not entertain any misconceptions:

If continues to be neglected, those sufferers with ME/CFS will also be neglected in the future. No matter what you call it. It's always been like that and this must finally stop. In the interest of everyone.

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Uncommon Sense 3RRR FM(@UncommonSense3R) 's Twitter Profile Photo

Tuesday on 3rrrfm! Philosopher Professor A C Grayling #FBPE #Reform #Rejoin #FBPR speaks in-depth about his new book, Who Owns The Moon? Historian and Australia Institute researcher Dr Emma Shortis on the latest in US politics. Refugee lawyer turned comedian Sashi Perera on her Melbourne International Comedy Festival show, Boundaries

Tuesday on @3RRRFM! Philosopher Professor @acgrayling speaks in-depth about his new book, Who Owns The Moon? Historian and @TheAusInstitute researcher Dr @EmmaShortis on the latest in US politics. Refugee lawyer turned comedian Sashi Perera on her @micomfestival show, Boundaries
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Tom Kindlon(@TomKindlon) 's Twitter Profile Photo

The Australian ME/ & (AusME) Registry is an online study of individuals aged 12yrs+ with & Long , as well as healthy volunteers

Link in image
ausmeregistry.org

So far '11 projects Australia-wide utilising the AusME Registry'

The Australian ME/ #CFS & #LongCOVID (AusME) Registry is an online study of individuals aged 12yrs+ with #MECFS & Long #COVID, as well as healthy volunteers Link in image ausmeregistry.org So far '11 projects Australia-wide utilising the AusME Registry' #PwME #auscovid19
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Ror Preston(@RorPreston) 's Twitter Profile Photo

A reminder that researchers are not, as a general rule, thinking about & incorporating into their research.

Only tiny %s of LC papers are mentioning ME (red)

We *need* ME/CFS to be explicitly named in the LC Moonshot bill - from a LC perspective, so that…

A reminder that #LongCovid researchers are not, as a general rule, thinking about & incorporating #MECFS into their research. Only tiny %s of LC papers are mentioning ME (red) We *need* ME/CFS to be explicitly named in the LC Moonshot bill - from a LC perspective, so that…
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Peter Fox 🦊🦘(@Peter_Fox59) 's Twitter Profile Photo

Another tragic loss from yesterday's madness at Bondi. Faraz Tahir, a former refugee & member of the Ahmadiyya Muslim Community killed doing his job as a security guard & attempting to save the lives of others. 😥

Another tragic loss from yesterday's madness at Bondi. Faraz Tahir, a former refugee & member of the Ahmadiyya Muslim Community killed doing his job as a security guard & attempting to save the lives of others. 😥
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Mark Di Stefano(@MarkDiStef) 's Twitter Profile Photo

Something to think for the anti-migration ghouls who flooded this website with bile — the guys who wielded a bollard against the Bondi attacker stopping him on the escalator identified as French migrant tradies.

Something to think for the anti-migration ghouls who flooded this website with bile — the guys who wielded a bollard against the Bondi attacker stopping him on the escalator identified as French migrant tradies.
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