Today is National Undiagnosed Day!

Despite affecting millions, #HHT remains vastly underdiagnosed.

Join us in our mission to change that. Share this post, spread awareness, & let's ensure that no one suffers needlessly due to lack of knowledge.

curehht.org/understanding-…

We're looking for research participants - please see below!

🚨 The abstract submission deadline for the 15th HHT SciCon is tomorrow!

Don't wait until it's too late. Submit your abstract today and make your mark in HHT research!
🔍ow.ly/rKLH50ReyTt

📚Check out our expanded Research Resources Hub 🙂
The Queen's Nursing Institute Community Nursing Research Forum

qni.org.uk/nursing-in-the…

QNIS NIHR ARC East of England NIHR School for Primary Care Research NIHR Applied Research Collaboration Wessex SAPC SAPHNA WeCommNurses 💙

Worth reading this by Sally Thorne 'On empty, redundant or pointless systematic reviews', a lovely piece in Nursing Inquiry onlinelibrary.wiley.com/doi/full/10.11…

A highly skilled nursing workforce delivering in excess of 84 million consultations each year. Only 50% of this workforce ⬇️ have access to above statuatory sick pay.. paternity and maternity benefits. Radical change needed. The RCN WeGPNs 💙

Looking to disseminate your research findings more widely? Since graduating my son Stretch has been creating research explainer animations like this one: youtube.com/watch?v=FYn3Uz…
It's a great way of reaching a wider audience. Please give his website a visit…

If you're near Cambridge this weekend, sign up for 'Galactic Genomes: Exploring the Universe of Rare Diseases'. The day will feature talks from leading researchers, #RareDisease patient voices, representation from 15+ rare disease organisations and more. buff.ly/3Jwp3Xz

There are some intersting PhD opportunties recently, including this one.....

🎥Replay Alert! If you missed our live #webinar on #HHT & #Pregnancy , watch the discussion from the webinar now on our YouTube channel.
➡️ Learn about managing risks and improving care during pregnancy with HHT.
➡️ Watch here: bit.ly/3QaWItS

#rarediseaseawareness

Are you a UK nurse working in or wishing to study oncology and haematology?

Following our partnership with DKMS UK | We Delete Blood Cancer, grants of up to £1,600 are available in a wide range of educational courses to support your career.

Apply by 31 May 👇
bit.ly/3IUABUk

Did you know that GP nurses…

⚡ are not on the same terms and conditions as NHS colleagues?

⚡ have only statutory maternity and sick leave terms and conditions?

⚡ are integral to running the primary care our communities rely on?

Learn more: bit.ly/49S7AUe

Looking to disseminate your research findings more widely? Since graduating my son Stretch has been creating research explainer animations like this one: youtube.com/watch?v=FYn3Uz…
It's a great way of reaching a wider audience. Please give his website a visit…

Hello world! We are the MEASURE study, an NIHR Research funded study led by joy adamson and Peter Sivey at Dept Health Sciences and @CHEYork. We are evaluating the high-volume low-complexity surgical hub programme run by NHS England. Our protocol was just published:

The stories behind the infected blood scandal - Canvas canvas-story.bbcrewind.co.uk/contaminated-b…

Hi, did you know I’m inviting people aged 18+ who have a Learning Disability, family members, carers & professionals in England to interviews to explore experiences of Radiotherapy decision making, treatment & support. Web: tinyurl.com/IDandRadio Video: tinyurl.com/RTLDstudy

Rachel Staffordshire and Stoke-on-Trent ICB Staffordshire Training Hub Gill Boast RN QN The Queen's Nursing Institute 3/ It’s slow progress.. but it’s progress nevertheless. We want to support our nurses into #GeneralPractice as a first career destination. 4.5% increase in recruitment into this field of nursing in last 12 months. We have such a long way to go in terms of retention ++++

The truth about breast-feeding and breast cancer

Is it true that 1 in 20 breast cancers could be prevented by breast feeding?

This was a statement lifted from the Lancet Breast Cancer Commission Report published yesterday - but it’s a global estimate that assumes EVERY woman…

Mat leave and sick pay are major issues for #GPNs and need to be addressed if we are serious about retaining this highly skilled and knowledgeable nursing workforce

I am a student SCPHN (HV) in Kent currently completing my Leadership module. For my innovation in practice I am exploring having a link HV for each #PCN . Has anyone any experience of this? Or are most HVs linked to a GP surgery rather than to the PCN?Julie RN 💙💜💛🎗 Jane Roome