EXACTLY

It's time to #GetRareAware !
We need to expand the newborn screening test panel in Ireland. Learn more about this important public health service at our webinar on Thurs Apr 18 at 12.30. Register to attend
eventbrite.ie/e/get-rare-awa…

New Note from Oireachtas Library & Research Service: Carbon Border Adjustment Mechanism - It provides an overview of the EU’s Carbon Border Adjustment Mechanism by examining the background to its introduction, its objectives, scope & the timeline for its implementation.

Government to seek legal advice on mechanism to allow use of overflow pipe to address Lough Funshinagh Flood Crisis Lough Funshinagh sac. Kieran O’Donnell TD for Limerick City Constituency

new Taoiseach must ensure that review of #longCOVID care priortised Long COVID Ireland (LCI) Long Covid News #pwLC #FBLC @LongCovid Long-Covid Advocacy 🇮🇪 Long Covid Ireland Long Covid Kids - #LongCovidKids

The 'interim' model of care for #longCOVID patients has been in place for 31 months but it will be next year before we see any change despite medical progress on the condition.

Crumlin Hospital must become Irelands National Centre for #Genomics medicine when the National Children's Hospital opens #RareDisease Rare Diseases Ireland RARE Ireland #Iamnumber17

RDI delighted to partner in HealthResearchBoard €3million 3-year RDCat program to build #RareDisease research capacity in Ireland. We will collaborate with consortium members and @EURORDIS & ERICA putting patient voice at heart of research and development of healthcare systems

The Joint Committee on Social Protection, Community and Rural Development and the Islands has published its report on the Operation and Effect of National and Local Policy on Island Communities as discussed on Oiléan Árainn Mhór, March 2024.

👉bit.ly/43TBsOX

€37,330,000 was estimated value of surplus wind energy (93,332 MWh) wasted in the last week in Ireland

There was enough surplus energy in Ireland to heat 31.1 million hot water tanks in the last week
John Mullins Denis Naughten Cathal Berry TD Darren O’Rourke TD Marc Ó Cathasaigh TD SEAI

Invitation for Public Comment: WHO principles for human genome access, use and sharing
Department of Health HSE Ireland IPPOSI Health Research Charities Ireland - HRCI Rare Diseases Ireland RARE Ireland Dr Colm Henry, CCO HSE Ireland Stephen Donnelly Denis Naughten Sally Ann Lynch
who.int/news-room/arti…

Only a few more days left to apply for the Nowlan Digitisation Grants scheme which closes on Thursday, 11 April.

See criteria & apply: ria.ie/nowlan-digitis…

Image: Kevin B. Nowlan (1921-2013) was a Dublin-born scholar and Member of the Royal Irish Academy.

#RIAgrants

Hi friends, anyone in West/North West Ireland have a speedy promotional products supplier ? We need 20 printed aprons for a promo for a fab culinary project

Explaining the cause of the flood threat at Lough Funshinagh & the plight of families in the vicinity of the turlough to Virgin Media News today

Outlined need to get water to the Shannon to alleviate the current crisis, as well as an urgent review of environmental laws

Where will climate migrants end up? Journalist Abrahm Lustgarten, in his new book 'On the Move,' looks to scientists and economists for answers.

sciencenews.org/article/on-the…

It was wonderful to share graduation celebrations with the excellent DCU Science & Health Comm graduates. They are a special bunch and I can’t wait to see what the future holds for them! @DCU School of Comms DCU Faculty of Humanities & Social Sciences @ DCU

This is Lough Funshinagh & this is the only flood defence mechanism that is now saving three / four homes from imminent destruction. What a way to live coming hours⁦Simon Harris TD⁩⁦Micheál Martin⁩ ⁦Denis Naughten⁩ ⁦Claire Kerrane TD⁩⁦Michael Fitzmaurice⁩

We need a permanent home for our genetics services Rare Diseases Ireland RARE Ireland #genomics

Breaking: there is no room for national genetic testing lab in new Children's Hospital - here is why this lab is so important youtu.be/iOFELMeTLAU?fe…
Rare Diseases Ireland RARE Ireland

I know Simon Harris TD for well over 20 years. I have worked with him in the past on flooding issues, health issues & science issues. And hope to continue to do so. I look forward to working with him over the next 12 months as Taoiseach & I’ll be voting for him next Tuesday