I’m honored to be part of the PPN Scientific Advisory Board. Hopefully we can push forward the transition from bench to bedside through involvement of pharmaceutical companies and physicians to bring a cure for PANDAS/PANS and OCD.

Watching your previously happy, confident child change after a #Strep infection is 💔😢. Seeing them struggle with painful motor & vocal tics & other debilitating symptoms.
This is our 2nd time with a 4 year gap in onset - still the lack of awareness is shocking #PansPandasHour

Joanne Holloway Hopeful This is hell to go through. It truly is such an awful condition/illness (sorry I don't know what it's classed as)

#Pans #Pandas is such a debilitating & 💔 illness - there needs to be more awareness & improved treatment pathways 🙏🏻💚 𝑫𝒓 𝑵𝒊𝒈𝒉𝒂𝒕 𝑨𝒓𝒊𝒇 #Pans PandasHour

UCL Centre for Inclusive Education IOE, UCL's Faculty of Education & Society 👀I'm really hoping the hot topics include some intel on #PansPandasHour panspandasuk.org/post/understan…

If you are parent/guardian/family member/friend of child/adult with #Pans #Pandas or adult who continues 2 suffer please do continue 2 add to this thread to build a picture of the change that is desperately needed. It remains pinned to my page and is tweeted every #Pans PandasHour

Such unnecessary prolonged suffering, loss & sadness due 2 lack of appropriate treatment pathways. Prompt diagnosis & treatment is essential 2 prevent exacerbation of symptoms & gives best chance of recovery. Prompt treatment of subsequent flares also imperative! #PansPandasHour

Please listen to this fab #podcast to learn about #Pans #Pandas and the horrific impact these conditions are having on families. Awareness is key to positive support #SEND #education #Pans PandasHour
redcircle.com/shows/662b1da0…

No child should have to lose childhood to #Pans #Pandas No teen should have to lose important teenage years. Without correct diagnosis/treatment horrific conditions are carried to adulthood. Young adults then become lost in an adult MH system #Pans PandasHour

#Pans #Pandas #Pans PandasHour

When a community rises!❤️ #ChooseYourChallenge event 2023 saw many wonderful people taking part in amazing challenges to raise awareness of conditions #Pans #Pandas & also a brilliant £50,000+ for
PANS/PANDAS UK #Pans PandasHour This was just 1 such event 👇🏻 panspandasuk.org/post/amazing-a…

Now 6.4K families with children with #Pans #Pandas in PANS/PANDAS UK support group, many with multiple children suffering. Then there’s the adult cohort. Numbers unknown! Left untreated conditions carry into adulthood. Conditions do not miraculously disappear at 18! #Pans PandasHour

#Pans #Pandas #Pans PandasHour

#Pans #Pandas #Pans PandasHour

#Pans #Pandas #Pans PandasHour

We need more awareness and education in general around #Pans #Pandas so those suffering and their families can receive greater understanding and support #BeKind #Pans PandasHour

Bruntcliffe Academy 👀I hope #PansPandasHour info is on the agenda here 🌈🙏💜eventbrite.co.uk/e/supporting-c…

#Pans #Pandas #Pans PandasHour

Sadly these symptoms are all too common with #Pans #Pandas The child's world becomes so small as does that of the parent/s & can have far reaching consequences for any siblings and extended family. Not rare! Please RP💚 #Pans PandasHour

Donna Tandy FCCT Palladian Academy Trust Claire McMurtry SENDCOS are the too often unsung heroes of MATS. I hope staff are enabled to access the wonderful free CPD training out there for #PansPandasHour

edpsyched.co.uk/blog/pans-and-…

eventbrite.co.uk/e/supporting-c…