We’re here for day 3 of #BSR24 ! Today, one of our volunteers is bringing the patient voice & lived experience to the conference talking at 10.55 about ‘Starting a JIA journey - what do families worry about and what do they need to know.’ Hope delegates can join us! Exhib stg 1 🐧

Fab to touch base with charities like CCAA at #BSR24 - an amazing badge scheme, family events and online communities as well as fab resources on a range of topics. And I got to meet Percy in person!

It was a privelage to meet Percy and also Glenda and Emily at #BSR24 . Teapot Trust and CCAA - Kids With Arthritis (JIA) do lots of lovely work together online, it's great to meet colleagues in person!

Lovely to see CCAA - Kids With Arthritis (JIA) at #BSR24 - thank you for the new badge! #penguin

Percy is ready for Day 2 of #BSR24 and excited to meet and greet all the delegates! We’re on Stand 51 in our signature yellow so you won’t miss us! Come and say hi if you’re in Liverpool! #PaedRheum #JIA #uveitis

Getting ready to take CCAA to Liverpool for #BSR24 Looking forward to catching up with all our amazing health professional friends and to meeting lots of new contacts who work with our families. Come and say hi on Stand 51 if you’re attending! #volunteers #smallcharity

It’s the 3 year anniversary of our award scheme! We’ve sent out
28 fundraising
39 research
50 raising awareness
158 effort
166 supportive sibling
187 active achievement
And … 585 courage awards!
#JIA #Uveitis #smallcharity #ccaaawards #8badgemedal

#juvenileidiopathicarthritis : Are you a child or young person with #JIA ? If so, we would be interested in hearing your views on the services provided to you in this short survey:
bit.ly/3ISezBD
NRAS; CCAA - Kids With Arthritis (JIA); British Youth Council; RCPCH_and_Us; Versus Arthritis

Last chance for any London families wanting to help out with a research focus group re family support for those living with #PaedRheum conditions (run by IMPACT team under Dr Polly Livermore) This final group will be face to face on 18/4/24 in London.
Email [email protected]

We’ve been busy reviewing the Individual Healthcare Plan (IHP) form for all those living with #paedrheum conditions. We’ll be getting parents/teachers/young people to take a look before we finalise. Hoping to have it ready before the end of the summer term #JIA #uveitis

Empowering people with MSK conditions through tailored and targeted supported self-management is key to building confidence and capability in managing their health and reducing inequalities.

Many ways to improve and achieve this in the Act Now report - Tinyurl.com/MSKActNow

CCAA have a role in ClusterConsortium. Our volunteer works as a 'Cluster Champion' to represent the voices of the families we support within Cluster. Cluster Champions have written this important paper calling for improvement in trial designs for children & young people with #JIA 👇

#juvenileidiopathicarthritis : Are you a parent or carer of a child or young person with #JIA ? If so, we want to hear your views on the services provided to you and your child in this short survey: bit.ly/4avoWXF Versus Arthritis NRAS; CCAA - Kids With Arthritis (JIA); British Youth Council

- 8 hrs 55mins streamed nonstop today
- 22hrs 18min this week in total
- 17,373 minutes watched
- 667 live viewers
- 4,458 chat messages
And £470 raised for CCAA - Kids With Arthritis (JIA)!!
🤯😍💛🖤

Tomorrow, I drive to Birmingham ahead of Naidex to carry on the advocacy mission. 😴😅😊