With just one week to go before our online discussion on Improving Care for Alpha-1 patients in Europe, we encourage everyone interested, to sign up! bit.ly/3jF63JG #Alpha1 #RareDiseases #EuropeanUnion

Just one day to go before our online event on Improving Care for Alpha-1 Patients in Europe, co-hosted by MEPs Isabel Wiseler-Lima and Marisa Matias - make sure to register and take part! #Alpha1 #EuropeanParliament #RareDiseases Alpha-1 Global bit.ly/3jF63JG

Today is the Improving Care for Alpha-1 Patients webinar, co-hosted by MEPs Isabel Wiseler-Lima and Marisa Matias - make sure to register and take part! The meeting begins at 14:30 CET #Alpha1Awareness Register here: bit.ly/3jF63JG

#Alpha1Awareness J’ai le plaisir de co-organiser ce webinaire sur le rôle de l’UE dans l’amélioration des soins et des traitements des patients ainsi que sur le dépistage précoce #Alpha1 👉 Rejoignez la discussion cet après-midi à 14:30 ↪️ Inscrivez-vous: bit.ly/3jF63JG

The Improving Care for Alpha-1 Patients webinar has begun! We are joined today by Members of European Parliament Isabel Wiseler-Lima and Marisa Matias! The presentations will commence following a greeting from our co-hosts #Alpha1Awareness To join, register here: bit.ly/3jF63JG

Scott Santarella, President and CEO of the Alpha-1 Foundation, is presenting on Alpha-1 Global, the Foundation's global program, and efforts being made to improve the lives of Alphas globally. #Alpha1Awareness

Professor Gerry McElvaney, of Beaumont Hospital and the Royal College of Surgeons in Ireland, is now presenting on Alpha-1: treatment, diagnosis and improving quality of life, during the Improving Care for Alpha-1 Patients webinar. #Alpha1Awareness

Prof. Joanna Chorostowska-Wynimko, Cross-Border Care Committee of ERN-Lung, is now giving her presentation on Alpha-1 and the European Reference Networks during the Improving Care for Patients Webinar. #Alpha1Awareness

Dr. Frank Willersinn and Fernanda Aspliche of Alpha-1 Plus Belgium are now discussing the successes and challenges of patient advocacy during the Improving Care for Alpha-1 Patients webinar. Alpha-1 Belgium #Alpha1Awareness

Thank you to Alpha-1 Global for inviting me to co-host this interesting webinar on #Alpha1Awareness Day. Each and everyone of us has a role to play in strengthening Europe’s response to #rarediseases.

Thank you Isabel Wiseler-Lima and Marisa Matias for co-hosting the Improving Care for Alpha-1 Patients webinar again this year and for recognizing the needs of the Alpha-1 community! #Alpha1Awareness

Hoy es el día. El día en el que pedimos: ➕ Investigación. ➕ Diagnóstico. ➕ Especialización. ➕ Concienciación. ➕ Formación del paciente. #DiaEuropeoAlfa1 #EUAlpha1AwarenessDay FEDER | Enfermedades Raras Raras pero Reales RarasNoInvisibles

Check out the new article on #MZ #Alpha1 in ATS Blue Journal this month. Part of a Patient Education Series it is co-authored by Gerry Finnerty an Irish Alpha to improve readability for all. #PPI #Alpha1Awareness Please like and RT. Read for free at bit.ly/35ITB8s

From June 8 - 11, 2022, we invite everyone to join us for the first ever Hybrid Alpha-1 National Conference featuring educational programs given by national experts and leaders in the Alpha-1 field. To view the #A1NC22 agenda or register, click here: ow.ly/F3fp50IXqBN

Join us on 10 May 2022 for the Alpha-1 Global Webinar on Advocacy! The webinar will take the lessons learned from patient advocacy on successful efforts and present additional pathways to strive for change. To register, click here: us02web.zoom.us/webinar/regist…

Join us at 14:00 CET/8 AM ET for the Alpha-1 Global Webinar on Advocacy! The webinar will take the lessons learned from patient advocacy on successful efforts and present additional pathways to strive for change. To register, click here: ow.ly/MHUA50J3Ont

Dr. Frank Willersinn is now providing successful examples of advocacy that Alpha-1 Belgium has taken in Belgium! To join, click here: ow.ly/NfoF50J3Ons