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Thanks Patrick O’Connor and Rep Richard Neal for a great meeting and your support #Head2Hill2019 #NBTS #AYJfund

#AYJfund #Head2Hill2019 thanks to Rep Seth Moulton and his team for signing the DOD letter and cosponsorship support of Palliative Care & Hospice Bill!

I took part in National Brain Tumor Society virtual Head to the Hill in memory of my daughter Anna and urged Congress to fund vital medical research because brain tumor patients need better treatments and a cure! Join us by taking action here: actnow.io/ecmOtqY #head2hill #btam #btsm

Thank you - there is still time to act

Thanks to Greg Skomal for providing a replacement aucoustic receiver to the PlymouthHarbormaster crew for deployment! This receiver was placed in Warrens Cove between Plymouth Beach and Browns Bank.

AYJ Fund Today Anna would have turned 25 years old. We celebrate her life and legacy by remembering her kindness and fighting spirit. Let's honor her memory by creating change together! ❤️ #pediatricbraintumor #braintumor #GBM Gliomatosis Cerebri @BrainTumorProj

⁦National Brain Tumor Society⁩ In-District Meeting Grateful4Eli Gerber coordinating& Ian Jones taking time w us today at Sen Markey’s office. Beautiful ppl advocating4support of brain tumor research $ &Credit4Caring act2support caregivers @maureenheatonfoundation @kittyheaton #GBM

We’re all smiles with @woosoxsmiley! 😀⚾️ Thank you for helping us #KCANCER, Smiley Ball!

If someone you know has a child being treated for cancer, there are a lot of ways to help. Here are five ways to support families dealing with #childhoodcancer: ms.spr.ly/6019noosV

~400 kids per year, usually at around 6 years old, are diagnosed with #DIPG/#DMG. Only half will live past 1 year, almost none to 3 years. Just in the US that means we lose >25,000 years of potential life each year to this disease. Read that again. #ChildhoodCancerAwarenessMonth

Mimi is so wonderful!! Great opportunity!!!

#1 Disease killer of kids people. I continually am in shock that it isn't a national priority. Why are we having to fight so hard, so long, just to motivate people to save our kids.

Congratulations to Katherine Warren, MD, Clinical Director of Pediatric Neuro-Oncology, who will receive the Pioneer Award for Pediatric Neuro-Oncology from the Children’s Brain Tumor Foundation at their Virtual Awards Benefit this evening! Learn more. ms.spr.ly/6014XqGsC

Our patients can’t trick-or-treat, so we need your help to bring the Halloween spirit to them! If you send us a Halloween card online, we’ll print it out and make sure every patient gets a message on a coloring card (free and easy). Follow these steps: secure1.chla.org/site/SPageNavi…

Our latest #4onebyone story, AYJ fund. Read the full story here: 4impr.it/s7KT… instagram.com/p/nqnmcbrnjG/

Making these for our next AYJ Fund Smiles project for the kids at the Jimmy Fund Clinic. What a great day!

#MoreThan4 Kids deserve more than 4% of NIH NCI funding #childhoodcancer