ACHA(@ACHA_Heart) 's Twitter Profileg
ACHA

@ACHA_Heart

Our mission: To empower the #CHD community by advancing access to resources and specialized care that improve patient-centered outcomes. #CHDCare4Life

ID:102877149

linkhttps://www.achaheart.org/ calendar_today08-01-2010 03:49:59

7,3K Tweets

5,5K Followers

1,6K Following

ACHA(@ACHA_Heart) 's Twitter Profile Photo

Our most updated schedule of ACHA events is always available on our website—check it out any time at achaheart.org/events. Plus, we've added 2024 Heart to Heart Regional Conference locations and dates! If you'd like to be kept in the loop about our events and other updates via

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🌳 The Walk for is fast approaching. Delaware Valley, let's unite for a great cause! Every step makes a difference, find more info at bit.ly/3WOnYSU.

🌳 The Walk for #1in100 is fast approaching. Delaware Valley, let's unite for a great cause! Every step makes a difference, find more info at bit.ly/3WOnYSU. #Walk4CHD #CHD
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It's that time of year when many of us are traveling or planning trips—and when traveling with , it's key to plan and be prepared. Check out these tips on our website for safe and enjoyable travels: ow.ly/uT7B50RYsEo. Awareness Care4Life

It's that time of year when many of us are traveling or planning trips—and when traveling with #CHD, it's key to plan and be prepared. Check out these tips on our website for safe and enjoyable travels: ow.ly/uT7B50RYsEo. #CHDAwareness #CHDCare4Life #ACHACares
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Our next webinar will review past and ongoing challenges in achieving equitable and appropriate care and discuss action items for improving access now and in the future. To learn more and register, visit ow.ly/l8Vs50RU7fQ.

Awareness Care4Life

Our next webinar will review past and ongoing challenges in achieving equitable and appropriate #ACHD care and discuss action items for improving access now and in the future. To learn more and register, visit ow.ly/l8Vs50RU7fQ. #CHD #CHDAwareness #CHDCare4Life
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Watch last night's webinar on improving executive function in at vimeo.com/949364439—or anytime on our website!

Up next: 'Identifying and Addressing Disparities in ACHD Care' on June 12.

Care4Life Awareness

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Please join us in congratulating the @hopkinsmedicine Adult Congenital Heart Disease Program, which has been awarded the status of ACHD Accredited Comprehensive Care Center by ACHA 👏 Johns Hopkins is currently 1 of 53 centers to hold this elite distinction.

Please join us in congratulating the @hopkinsmedicine Adult Congenital Heart Disease Program, which has been awarded the status of ACHD Accredited Comprehensive Care Center by @ACHA_Heart 👏 Johns Hopkins is currently 1 of 53 centers to hold this elite distinction. #CHDAwareness
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Less than two weeks left! Applications for ACHA's 2024 Research Awards are due June 3. Learn more below:

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ACHA honors Asian Americans & Pacific Islanders who are making a difference in the community for . Learn more about Pip Hidestrand, and join us in thanking her for supporting the ACHA community and providing guidance and resources through her work as a

ACHA honors Asian Americans & Pacific Islanders who are making a difference in the #CHD community for #AAPIHeritageMonth. Learn more about Pip Hidestrand, and join us in thanking her for supporting the ACHA community and providing guidance and resources through her work as a
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We demand better research, surveillance, and awareness of adult congenital heart defects. The Congenital Heart Futures Reauthorization Act of 2024 (H.R. 7189/S. 3757) will continue federal funding of up to $10 million through 2029 and identify ways to address the shortage of

We demand better research, surveillance, and awareness of adult congenital heart defects. The Congenital Heart Futures Reauthorization Act of 2024 (H.R. 7189/S. 3757) will continue federal funding of up to $10 million through 2029 and identify ways to address the shortage of
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Join us this Wednesday! Learn more and register for this free webinar at ow.ly/YLSt50RuYIP.

Awareness Care4Life

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A heartfelt thank you to all our amazing supporters who participated in the DCMARVA Walk for 1 in 100 at Wheaton Regional Park to raise awareness for ! Despite the rain, you still showed up! 🙌 Keep an eye out for photos and highlights! 📸

A heartfelt thank you to all our amazing supporters who participated in the DCMARVA Walk for 1 in 100 at Wheaton Regional Park to raise awareness for #CHD! Despite the rain, you still showed up! 🙌 Keep an eye out for photos and highlights! #DCMARVA #DMV #1in100 📸
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The application period for the ACHA Patient & Family Advisory Board is open! Now through June 15, we invite patients and family members across the country to apply to serve on this board. Visit ow.ly/yX7L50RIR77 to learn more and begin the application process.

The application period for the ACHA Patient & Family Advisory Board is open! Now through June 15, we invite #CHD patients and family members across the country to apply to serve on this board. Visit ow.ly/yX7L50RIR77 to learn more and begin the application process.
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Leigh Kamping-Carder(@Leigh_KC) 's Twitter Profile Photo

🧵 The numbers are shocking but not surprising: It costs almost $50,000/year to have complex congenital heart disease, per a report from Additional Ventures.

I spoke to the report’s authors and highlighted the key findings. Read more 👉 bit.ly/chdcosts

Awareness

🧵 The numbers are shocking but not surprising: It costs almost $50,000/year to have complex congenital heart disease, per a report from @AdditionalVent. I spoke to the report’s authors and highlighted the key findings. Read more 👉 bit.ly/chdcosts #CHD #CHDAwareness
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Anushree Agarwal(@AnuAgarwalMD) 's Twitter Profile Photo

We hope lessons learned about the costs of pregnancy on CHD patients are useful for patients, CardioOb teams, and policymakers to plan and advocate for appropriate resources. Zipper Sisters ACHA TheCHPHC Conquering CHD Mended Little Hearts Cardio-Obstetrics

We hope lessons learned about the costs of pregnancy on CHD patients are useful for patients, CardioOb teams, and policymakers to plan and advocate for appropriate resources. @ZipperSisters @ACHA_Heart @TheCHPHC @conqueringchd @MLH_CHD @CardioOb
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Monthly giving provides consistent funding and allows ACHA to provide vital resources to patients, families, caregivers, and medical professionals—as well as keep the community connected through in-person and virtual events, online resources, and more. Learn more at

Monthly giving provides consistent funding and allows ACHA to provide vital resources to patients, families, caregivers, and medical professionals—as well as keep the #CHD community connected through in-person and virtual events, online resources, and more. Learn more at
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Get ready to feel all the feels! Michelle captured this beautiful moment at our walk where 5-year-old Hagen, a Fontan palliated patient, finally met 35-year-old single ventricle patient Brittney. Their connection over the summer led to this heartwarming meeting and a reminder

Get ready to feel all the feels! Michelle captured this beautiful moment at our walk where 5-year-old Hagen, a Fontan palliated patient, finally met 35-year-old single ventricle patient Brittney. Their connection over the summer led to this heartwarming meeting and a reminder
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ACHA visited Senate offices on Capitol Hill yesterday to advocate for passage of the Congenital Heart Futures Reauthorization Act of 2024 (H.R. 7189/S. 3757). While we await a floor vote, help keep at the top of the congressional agenda by asking your senators to fully fund

ACHA visited Senate offices on Capitol Hill yesterday to advocate for passage of the Congenital Heart Futures Reauthorization Act of 2024 (H.R. 7189/S. 3757). While we await a floor vote, help keep #CHD at the top of the congressional agenda by asking your senators to fully fund
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Join us for a stroll through Wheaton Regional Park for the Walk for . Every step counts towards making a real impact in the fight against CHD. Let's rally, DCMARVA - who's up for the challenge? 💪 Check out bit.ly/4bjplwR for details. 🌳

Join us for a stroll through Wheaton Regional Park for the Walk for #1in100. Every step counts towards making a real impact in the fight against CHD. Let's rally, DCMARVA - who's up for the challenge? 💪 Check out bit.ly/4bjplwR for details. #Walk4CHD 🌳
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