22Q11 Ireland(@22Q11_Ireland) 's Twitter Profileg
22Q11 Ireland

@22Q11_Ireland

Parent group raising awareness of #22q
Working toward integrated care for 22qDS & individually rare collectively common #RareDiseases. Tweets AnneL CHY 17647

ID:1566409892

linkhttp://www.22q11ireland.org calendar_today03-07-2013 18:30:17

69,7K Tweets

4,9K Followers

4,9K Following

22Q11 Ireland(@22Q11_Ireland) 's Twitter Profile Photo

'VPI occurs in patients with cleft palate at rates around 20–30 % following palatoplasty and has associations with 22q11.2 microdeletion syndrome (22qDS)'
sciencedirect.com/science/articl…

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22Q11 Ireland(@22Q11_Ireland) 's Twitter Profile Photo

'Syndromic children had higher revision rates and were significantly less likely to obtain normal resonance following primary surgery than non-syndromic patients.'
Jane Gunn Aisling O Dwyer Tanya Ward
sciencedirect.com/science/articl…

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22Q11 Ireland(@22Q11_Ireland) 's Twitter Profile Photo

'Care pathways in childhood neurodevelopmental disorders: Toward greater awareness of KBG syndrome among pediatricians'
Individually rare collectively common

sciencedirect.com/science/articl…

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Dr Liqa Ur Rehman 🇮🇪 🇵🇰 🇳🇿(@LiqaDr) 's Twitter Profile Photo

Painful 💔
Pls RT & help this poor mother!

1/ This is another senior & skilled Obs/Gynae non-EEA doctor who just left Ireland after a long 2 year wait for her children and spouse visa to be approved. She was recruited during Covid time to tackle staffing & health crisis.....1/5

Painful 💔 Pls RT & help this poor mother! 1/ This is another senior & skilled Obs/Gynae non-EEA doctor who just left Ireland after a long 2 year wait for her children and spouse visa to be approved. She was recruited during Covid time to tackle staffing & health crisis.....1/5
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Sinéad McGarry(@Sineadmcgar) 's Twitter Profile Photo

Irish healthcare policy: 'You can come and care for us and our families and must sacrifice your own to do so'. Sounds like a foolproof staff retention approach..

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Children in Hospital(@childreninhosp) 's Twitter Profile Photo

We're looking for play volunteers to join us on weekdays across the Children's Health Ireland (CHI) hospital sites in Dublin!

If this sounds like you, please see more information here - childreninhospital.ie/volunteer-vaca…

We're looking for play volunteers to join us on weekdays across the Children's Health Ireland (CHI) hospital sites in Dublin! If this sounds like you, please see more information here - childreninhospital.ie/volunteer-vaca…
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Screen4Rare(@Screen4Rare) 's Twitter Profile Photo

Ready to take action? 🚀

Make a lasting impact on children's health by talking about International Neonatal Screening Day ( )

Share your plans with us bit.ly/3WccQwQ

Ready to take action? 🚀 Make a lasting impact on children's health by talking about International Neonatal Screening Day (#INSD) Share your plans with us bit.ly/3WccQwQ #SeeTheUnseen
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Dr Tom Clonan(@TomClonan) 's Twitter Profile Photo

✊Proud to Progress my Disability (Rights) Misc Provisions Bill. This Bill Creates Legal Rights for Citizens to Therapies, Interventions & Independent Supports within an Assessment of Need - Within the Therapeutic Window. We Must Not Flinch from Fundamental Human Rights

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22Q11 Ireland(@22Q11_Ireland) 's Twitter Profile Photo

Early learning is of particular interest to parents of children with LD/ID. Complex care needs extend into the educational realm so this is important to Children's Health Ireland RARE Ireland families also.
National Early Learning and Childcare Agency Consultations npc.ie/news-events/na…

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Cormac Russell(@CormacRussell) 's Twitter Profile Photo

Understanding ground‐up community development from a practice perspective researchgate.net/publication/36…

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Hugh O'Connell(@oconnellhugh) 's Twitter Profile Photo

🚨Exclusive: The chief medical officer Breda Smyth privately warned the government her office was “critically fragile” and “functioning at high risk” three months before she resigned

thetimes.co.uk/article/medica…

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